Within the UK there are many people who cannot eat and drink. This might be due to a chronic problem such as a motility disorder or due to treatment on their mouth and throat meaning the problem is of a more temporary nature.
When this happens there is a form of feeding called "enteral feeding" or you might hear about PEG tubes or J tubes too. The tube is kept in through the abdomen and the patient has feeds through a syringe or is attached to a feed pump which will push the feed through at a set rate and volume.
People often feel alone and isolated and there are many issues such as social ones related to not being able to eat and/or drink.
There is a National Support Network called PINNT and I am a member of this group. A few months ago I started a blog and have been in contact with many people of all ages and across the world who have enteral feeding.
The blog is there for all including carers, professionals and of course enterally fed patients, their family and friends! The aim of the blog is one of information and support in a way which is accessible to all. I am happy to consider other people's stories for inclusion on the blog and of course you can also contact me with idea's and questions as well as leave comments for all to read.
I look forward to welcoming you to mypeggypeg.blogspot.com in the very near future and hope the blog will provide you with the space in which to obtain the contacts and support we all need when living with what can be complex and sometimes rare or misunderstood conditions.
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