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National Conference on Huntington's Disease Opens in Brisbane

Information provided by Queensland Disability News - Published: 2010-09-13

Disability Services Minister Annastacia Palaszczuk today officially opened the 2010 National Conference on Huntington's Disease at the University of Queensland (UQ).

Disability Services Minister Annastacia Palaszczuk today officially opened the 2010 National Conference on Huntington's Disease at the University of Queensland ( UQ ).

The conference at UQ’s Queensland Brain Institute brought together experts, health professionals, care workers and members of Huntington’s Disease support associations.

Ms Palaszczuk said it was important for people to come together and share their knowledge and experiences of the disease.

“We need to share our collective knowledge so that we can better understand Huntington’s Disease and its impact,” Ms Palaszczuk said.

“This knowledge has the potential to tackle issues associated with the disease and help to improve people’s quality of life.

“The world-renowned experts and researchers at this year’s conference are carrying out important work which could make a real difference to many Queensland families.”

Huntington’s disease is a neurological condition which results in a gradual loss of cognitive, physical and emotional function.

In Australia 1,200 people have Huntington’s disease and another 6,000 are at risk. There is no cure for Huntington’s Disease.

Ms Palaszczuk said the State-Commonwealth Younger People in Residential Aged Care initiative was helping Queenslanders with a disability to live independently in the community.

“Ellen Buckley Place in Inala is one of the great success stories of this program,” she said.

“It’s a supported accommodation complex named after a local woman who died from Huntington’s Disease last year.

“It’s now home to eight younger Queenslanders with a disability who are getting the support they need to live independently in the community

“This program is literally changing people’s lives and so far it has helped divert more than 100 younger Queenslanders from entering aged care

“It’s worth $47.8 million to Queensland over five years and I’ve asked the Federal Government to extend the program beyond 2012.

“Queenslanders with a disability deserve a chance to live extraordinary lives.”

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