There are more than 6000 known rare diseases and over 30 million people living daily with them. 28th February marks Rare Disease Day 2018, a date that highlights awareness around these conditions and the need for more research into them. Private cord blood company, Smart Cells, has chosen to support Rare Disease Day this year by running a social media campaign across their platforms.
If you're living with a rare disease, which is defined by the European Union as one which affects less than 1 in 2000 people, you might feel alone with your condition. Treatments and cures can be few and far between; misdiagnoses and delayed treatment for rare diseases are common. This is due to the rarity of the conditions meaning that the opportunity to research them is so small, and scientific knowledge surrounding them is lacking.
The theme for this year's Rare Disease Day is research and patient participation.
Encouraging healthcare professionals, policy makers and researchers to seize the opportunity for research with current patients can make a world of difference to developments for those being diagnosed or treated currently and in the future.
This is why Smart Cells have chosen to show their support for Rare Disease Day 2018.
Thanks to occasions like this, awareness has increased significantly. The first Rare Disease Day events took place in 2008 in just 18 countries; in 2017, 94 countries participated. Several conditions that Smart Cells' audience live with can be categorised as rare diseases, and so their campaign aims to increase their awareness of what is being done to support them as well as encouraging them to participate in research that could potentially help future patients with these conditions.
Smart Cells' social media campaign aims to cover the following four bases:
Incorporated in July 2000, Smart Cells was the first cord blood stem cell storage company in the UK. Smart Cells are also the first UK private company to have successfully released stored cord blood units to transplant centres worldwide, to treat children with life-threatening illnesses. Leading the way by using state of the art technology, Smart Cells are ensuring that they are the most technologically advanced and innovative company in the field.
Smart Cells have released more stem cells units for transplant use than any other private cord blood bank in the UK. Find out more about their transplants here http://www.smartcells.com/our-transplants/
Smart Cells have a team of phlebotomists (blood collection specialists) operating on a 24/7 basis. This service has dedicated staff, emergency telephone numbers and call out personnel which save new parents the inconvenience of having to find, book and manage this service for yourself. They also have partner labs in Spain, South Africa and Hong Kong as well as a disaster recovery unit with a PLC in the rare event of the company going bankrupt.
The UK lab is situated 3 miles from Heathrow Airport so that all international samples arrive as quickly as possible. Smart Cells have collected samples from over 70 countries and have offices in Europe, Africa, Middle East, Asia and the Far East.
:: List of International days of observance established by the United Nations (UN), World Health Organization (WHO) and United Nations Educational Scientific and Cultural Organization (UNESCO)...Full Story