Caregivers - Carers: Services, News, Information: Publications and Documents
Summary
This database contains a comprehensive collection of publications related to caregivers and carers. These publications include articles, research papers, and documents covering various aspects of caregiving and support services. The database is regularly updated and covers a wide range of topics relevant to the disability community, their families, and caregivers. While the primary focus is on caregiving, the publications also address related subjects such as disability rights, healthcare, education, employment, and independent living, reflecting our broader mission to provide valuable resources and information to the disability community.Searching the Database
The data table below lists items that may have been updated or revised, but the table defaults to sorting by descending publication date; you can search and sort by clicking column headers (JavaScript required). Items in this category are also distributed via our Caregivers - Carers: Services, News, Information RSS feed.
| Title and Description | Ed | Publish Revised |
|---|---|---|
| HCBS Reform: Community Living Over Institutions HCBS reform offers cost-effective community living for seniors and disabled people, but needs higher wages, housing support, and dignity of risk culture. | ✓ ✓ | |
| It's Time to Care for Caregivers: Family Caregiving Legislative Agenda Senator Markey introduces six-bill legislative package providing financial, respite, and healthcare support for America's 63 million family caregivers. | ✓ ✓ | |
| The Hidden Cost of Care: Society Undervalues Unpaid Caregivers Unpaid caregiving, often provided by family members and friends, is significantly undervalued in our society. | ✓ | |
| Changes Challenges and Choices - Caring for a Disabled Family Member Kathleen M. Cleaver writes regarding the changes and challenges of unexpected lifestyle changes and choices that need to be made. | ||
| Yelp Reviews of Nursing Homes Tend to Focus on Staff Attitudes and Responsiveness University of Southern California study finds Yelp reviews of nursing homes tend to focus more on staff attitudes, staff responsiveness and the physical facility itself than government reviews. | ||
| Palliative Care Findings on Caregiver Depression, LGBT Partners, Moral Distress Major findings from the latest research on hospital palliative care according to study published in the Journal of Hospital Medicine, an official publication of the Society of Hospital Medicine. | ||
| Caregiving by Family Members and Other Unpaid Individuals Researchers examine characteristics of unpaid caregivers and note health-related tasks caregivers provided, and how caregiving affected care providers. | ||
| Film Highlights Absurdity of 15 Minute U.K. Care Visits Satirical film starring Claire Sweeney highlights the indignity suffered by thousands of elderly people because of 15 minute care visits. | ||
| Delays in California Caregiver Payments Hearing For years, California state has been hearing complaints that carers state-issued paychecks are often delayed for days or weeks in the In Home Support System. | ||
| Report Reveals Distress, Anger, Depression and Burnout Among Family Carers Health Quality Ontario report finds distress, anger, depression and burnout growing among family members and friends looking after home care patients. | ||
| Home Care: LGBTQ People Often Invisible Study reveals LGBTQ communities face barriers to finding high quality home care that meet their unique needs. | ||
| Family Caregivers and Employer Compassion Employers are finding themselves wanting to express compassion while simultaneously maintaining a productive workplace. | ||
| Carebots: Family Care and Personal Assistance Information regarding the use of CareBots as an automated caregiver system for the elderly and people with disabilities. | ||
| Who Mothers Mommy? Phenomenological Experience of Motherhood New research shows the critical role relationships have in keeping a mother happy, healthy and able to give of herself. | ||
| NY CARE Act Supports Family Caregivers Hospital Support New York's CARE Act requires hospitals to train family caregivers in medical tasks, notify them before discharge, and include them in patient care plans. | ✓ ✓ | |
| Long Distance Caregiver Commuting Tips Amy Goyer shares insights into meeting the challenges of long-distance caregiving. | ||
| Pope Francis Puts Spotlight on Senior Neglect Remarks by Pope Francis came on the heels of a new survey showing self-neglect among the elderly is a growing problem that often goes unreported. | ||
| Family Caregivers Overwhelmed by Caregiving Responsibilities An estimated 4.1 million family caregivers provide the equivalent of $32 billion of care annually in New York state. | ||
| Daughters Provide Majority of Parent Care - Sons Do Little as Possible Study reveals women appear to provide as much elderly parent care as they can, while men contribute as little as possible. | ||
| Home Health Care Safety and Awareness Issues Information on important safety issues for home healthcare workers as well as safety guidelines for patients receiving home care. | ||
| Understanding Patient Abuse: A Caregiver's Perspective on Risks and Solutions A caregiver's perspective on patient abuse, highlighting causes, warning signs, and prevention strategies for safer, more compassionate care. | ✓ ✓ | |
| Challenges and Solutions of Caregiving Providing care for others can be stressful and has the potential to contribute to depression and serious illness. | ||
| Home Care Concerns: Providing Care at Home Costs of providing care in a persons own home and community are much lower than providing the same quality of care in an institution. | ||
| House Vote to Repeal CLASS Ignores Needs of Seniors, Families and Caregivers US House of Representatives voted to repeal CLASS program without offering alternative to address growing long term care crisis among middle class Americans. | ||
| Most People Will Need Long-Term Care at Some Stage Long-term care encompasses the support services people might need when they struggle with disability or chronic disease. | ||
| How to Choose a Home Health Aide Information on how to choose a home health aide, homemaker, or personal care assistant, before making a hiring decision. | ||
| Prevent Family Clashes When Caring for a Family Member Controversies and court fights involving aging parents will rapidly grow in direct proportion to the aging U.S. population. | ||
| Caring for Elderly Relatives in Britain Three quarters of Brits would rather take on the burden of caring for elderly relatives then put them into a home. | ||
| Many Families Overestimate Cost of Senior Home Care Many overestimate senior home care costs; this study shows in-home care is more affordable than assumed, helping seniors and the disabled stay in their homes. | ✓ ✓ | |
| U.S. Family Caregiving Valued at $450 Billion A new report by AARP Public Policy Institute found the economic value of unpaid care reached an estimated $450 billion. | ||
| Assisted Living: Best Practices Revealed The Caring Checklist, compiled by Caring's seasoned experts, includes critical considerations for evaluating assisted living facilities. | ||
| Family Caregiver Training - VA Partners with Easter Seals Partnership to provide comprehensive Caregiver Training to Family Caregivers of eligible post-9/11 Veterans. | ||
| Depression and Burden Affects Caregivers of Those with Sensory Impairment When a person experiences impairment or declining health, caregiving typically falls to a family member. | ||
| Family Caregivers Face Financial Problems, Stress and Work Issues Majority of caregivers are impacted by the financial and emotional costs of caring for their loved ones. | ||
| Seniors Can Benefit From Congregate Living Seniors in congregate living situations like assisted living or retirement communities experience greater subjective well-being. | ||
| Flagler County In-home Care - Caring for the Elderly Always Best Care of Flagler County employs professionals who excel in giving quality care with compassion and respect. | ||
| Family Caregiving: Facts and Myths Americans significantly underestimate the impact that a family member long term care needs could have on their own lives. | ||
| Carers Advisory Council to Look at Issues Faced by Young Carers New Carers Advisory Council will consider how young carers can be better supported and engaged. | ||
| Caring Hands Support Program for Carers - Ireland Caring Hands is a support program for carers of people with arthritis in Ireland. | ||
| 60% of Women Don't Know How They'll Pay for Long-Term Care Needs Long-term care is a combination of elements that enable us to live as well as possible how and where we want. | ||
| Fact Sheets Highlighting Critical Issues on Long-Term Care The SCAN Foundation Series of National Fact Sheets Highlighting Critical Issues on Long-Term Care. | ||
| Detecting Depression in Caretakers of Mentally Ill Adults Each of the DCSs questions targets a symptom of depression and measures negative thinking. | ||
| On-the-job Injuries Hurt Home Health Care Industry Cutting back on home health aide training increases employees injury risk and turnover intentions incurring more costs. | ||
| Tips for Caregivers Searching for Help and Information Anthem Blue Cross and Blue Shield provides tips for caregivers learning how to navigate the system on behalf of parents, grandparents and others. | ✓ | |
| Who Will Take Care of 71.5 Million Baby Boomers Examining America's urgent need to prepare for the care of 71.5 million aging baby boomers amid critical gaps in senior services nationwide. | ✓ ✓ | |
| Patient Advocacy Leads to Better Quality of Life Connection between empowering patients with information support and improved access to best available care. | ||
| Recognition for UK Caregivers During Carers Week Understanding and support for UK carers who provide vital care for their families friends and communities. | ||
| Cost of U.S. Home Health Care Chart of average home health care prices in America listed by state of residence. | ||
| Family Carers Share Illness Experience of Dying Patients Carers felt run down and were sharing the illness especially as time went on and death approached. | ||
| Residential Care Home Workers Need More Training to Give Seniors a Home for Life Carers working in residential homes need funding and support to upskill to ensure more older people have a home for life. | ||
| Family Caregiving can be Stressful and Isolating Intervention programs are expensive and many organizations can not offer programs or can reach only a small subset of stressed caregivers. | ||
| CareRunner Caregiving Website Launched CareRunner website designed to provide non-professional caregivers with online tools information and support. | ||
| Rally in Oakland Against Cuts in IHSS Program Home-care providers rally at Federal Courthouse in Oakland to prevent low-income seniors and disabled losing critical in home care services. | ||
| Australia Acknowledges Carers during Carer's Week Australia acknowledges and supports the good work done by caregivers during carers week 2009. | ||
| Home Health Care Report More than 105000 patients treated by almost 900 agencies nationwide provide perspectives on their care for the annual Home Care Pulse Report. | ||
| Injury and Hazards in Home Nursing Injury and hazards in home health care nursing are a growing concern. | ||
| Chronic Pain in Nursing Home Residents Underestimated Relatives and healthcare staff find it hard to diagnose pain levels in nursing home residents accurately. | ||
| Needs of Unpaid Caregivers of People with Diabetes Better understanding the daily needs and struggles of unpaid caregivers of people with diabetes. | ||
| Providing Home Assistance to Seniors Senior assistance to help Seniors stay in their homes and keep them involved in social activities without taking away their independence. | ||
| Caregiver Coalition Commends Government for Allowance to Aid Caregivers Allowance of $400 a month to family caregivers helping relieve financial toll incurred when families undertake to care for people at home. | ||
| Certified Nursing Assistant Code of Ethics An article presenting an outline of the Certified Nursing Assistant Code of Ethics. | ||
| Alliance Joins MADIL the State's Online Elder, Disability Info Database Massachusetts aging and disability information locator taps alliance as home care source. | ||
| Family Caregivers Contribute $25 billion in Unpaid Labor to the Health Care System The imputed economic contribution to the Canadian healthcare system of middle-aged and older unpaid caregivers providing care to the elderly. | ||
| Find a Qualified Reliable Caregiver Information and references for finding a qualified and reliable caregiver for seniors children and persons with a disability or health condition. | ||
| Caregivers Not Receiving Help They Need Caregivers of children with special health care needs often do not get the respite care they need. | ||
| Choosing a Home Health Care Service How to choose a home health care services that provides help with errands and chores to skilled medical care from nurses and therapists. | ||
| Medication and Care for Alzheimer Patients Caregiving tips for Alzheimer patients who suffer from anxiety when exposed to noise or larger number of people. | ||
| Abuse of People with Dementia by Family Carers Common Study reveals 34-62% of dementia caregivers report abusive behavior, emphasizing urgent need for mental health and caregiver support. | ✓ ✓ | |
| Family Caregiving Research shows many of us are more comfortable with the term family caregiver as it implies emotional connection between care giver and care receiver. | ||
| Home Care Training for Caregivers An increasing number of caregivers are taking care of an elderly parent or someone in the family who is disabled. | ||
| Caregivers that Provide End of Life Care Need Support The daily demands of caregiving for someone nearing the end of life can be emotionally and physically draining for caregivers. | ||
| Home Safety Essentials for Caregivers and Seniors Essential home safety tips for caregivers to reduce fall hazards and protect seniors and disabled individuals through practical prevention measures. | ✓ ✓ | |
| Hiring Caregivers for Seniors and Disabled Hints and tips including things to look for when hiring a caregiver for a family member. |
Key: the first check mark indicates the publication carries an editor's note; the second indicates a footnote.
Note: Disabled World compiles disability-related publications as a resource. Inclusion does not imply endorsement by Disabled-World.com. To submit disability-related articles and peer-reviewed manuscripts and papers, ensure submissions comply with our guidelines. For questions, please contact us.
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