How to Cope with Sudden Illness or Disability
Author: Martina Roe : Contact: Disabled World
Published: 2009-07-28 : (Rev. 2019-03-05)
Synopsis and Key Points:
Article gives assistance to help you cope with a sudden illness or disability.
Illness and disability might come in many forms. Some illnesses and disabilities have to be faced from birth; others are developed during people's lifetime.
They can come on suddenly or gradually develop over many years without the person knowing about it. People are usually genetically predisposed but illnesses can also be the result of the polluted environment or the lifestyle we adopt. Coming to terms with any illness is not easy and might take a long time especially when your illness surprises you all of a sudden.
Imagine that you are happy, you life is going very well and you are very proud of all your achievements.
You have got a great family and circle of friends until one day something very unfortunate happens to you. You become ill or have an accident and you can no longer enjoy life as you used to. Suddenly everything seems to be falling apart. All kinds of scenarios may come up; you might no longer be in a position to support your family financially, you could lose your job, simply your dreams are falling apart.
This is the hardest time and naturally you will be down about it, yet with a few changes you might still be able to live your life to the full. The following easy steps should help you in the right direction.
1. Allow yourself time to come to terms with your illness
I understand fully how you feel. The whole world is upside down and you are in the middle of it believing life will never be the same again with you just being miserable fighting your illness or disability. You might lose your friends because you will no longer be able to socialize as you used to. But this is also the time to find out who your real friends are.
They will be there to support you and do anything that is in their strength. They will, however, not feel sorry for you forever and you will have to find out soon that if the only topic of conversation is your illness, with time even your kind hearted friends will lose interest. It is also important for you to judge, whether your friends are honest with you.
Even though it might not be obvious to you some of your friends could be taking advantage of you and drain you emotionally. My sister, before her marriage broke up, used to look for emotional support from her friends. Someone, who she really trusted and thought highly of, actually used to say to her things which were making her feel even more depressed and she did not realize it at that time. Once I went to see her friend too and she told me nasty things about my father that were not true, with a view to manipulate one of his decisions about my future education. I was on top of things so I just ignored it and did not think highly of my sister's friend but she could not do it herself at that time. Later she realized how much her friend was harming her and stopped visiting her.
Thinking positively is no easy matter but it is important to be enthusiastic about life again. There are only two choices for you to make. You can stay depressed and complain about your problems till the rest of your life or you have the option of trying to make most of your life even with all your limitations. We all know that cancer patients who remain positive live longer than those who become very depressed. The same applies to any chronic illness or disability. My sister's first husband lost his leg in an accident. He eventually drank himself to death. If he had taken a more positive approach and enjoyed the little things that remained to him, he could have still been here with us enjoying all the achievements of his daughter who is now in her twenties.
2. Allow yourself time to let all the negative emotions to go first, which might take time
It is good to know that there are people who you can talk to and counseling might be especially appropriate at this time. I found the help of a counselor especially helpful at the stage of my life when I myself became ill and could no longer achieve my own goals. I was always very ambitious and performed very well at school. Everyone thought highly of me and believed I would do very well in my life. I remember people did not approve when I chose not to go to University. After I had my children, however, I studied part time with the Open University and finally got my degree. I wanted to become a teacher of modern foreign languages but unfortunately an illness stopped me from pursuing my ambitious plans. I found it very difficult to accept and even thought life was not worth living. I felt frustrated because I was not getting better; my illness was to stay forever. There is no remedy or pill. I kept asking myself why did this have to happen to me, why is life so cruel
When I was about 10 years old my mother went with her friends to see a healer who made a diagnosis from the retina of your eyes. As a young child I was constantly ill and on antibiotics with pneumonias, ear infections, or tonsillitis. I eventually grew out of these illnesses but was always aware of them. The lady healer looked at my eyes and told my mother that I was healthy then but one day I would be ill. I never worried about these words but when I became ill I suddenly realized she was right. I could do nothing about it, I had to accept it and start a new life.
At that difficult time of my life it was really good to talk. I was aware, however, that conversations with my family and friends just became dominated by my illness and that this was no fun for them and arranged counseling. My counselor could understand my problems better than anybody else. I could not comprehend why anything so unfortunate had to happen to me.
I never did anything wrong, to the contrary I always thought of others before I thought of myself. But my counselor and others told me not to think like that. It is just the way life is and there is no point trying to find an answer why. The important point to realize though is that illness is not a punishment of something wrong you have done. My counselor also told me to enjoy and appreciate the good things in my life that I still have and I always think of that because I have many great things to enjoy in my life that help me to forget the hard side of life.
The process of accepting your illness or disability can be a long one. It is absolutely normal to feel depressed as long as you are enjoying it. But you will soon start to realize that feeling sorry for yourself will get you nowhere. You still have a life that you can enjoy; you can review what your strengths are and what you can still do. Now is the time not to dwell in the past but concentrate on the things you can still do in the future. Consider all your strengths, the qualifications you have; seek the help of a career adviser who will be more than happy to help you find a suitable job you might still be able to do bearing in mind your limitations. I shall come back to your career opportunities in strategy number 7.
- Take time to accept your new situation
- Talk about your problems - seek help of a professional counselor
- Start to think of your strengths rather than concentrate on your weaknesses
- Rethink your career opportunities.
3. Nurture yourself
I have a question for you to which I would like you to give me a sincere answer.
Who is the most precious person in your life, who do you value most? Give it a thought before you read on.
Your partner, your child or perhaps your parent? Was this your possible answer
I am sure all these people mean a lot to you otherwise you would not be naming them. But there might be times when even they can let you down.The only person you can always trust is you.I know it sounds funny but you will always be in your own company. You can either cheer yourself up or make yourself miserable. But first of all you need to take care of yourself and make sure that you can keep yourself as healthy as possible.
Naturally you cannot cure your illness or disability but you can learn how to live your live to the best - that is how to relieve your symptoms in the best possible way.
There is so much you can do to help yourself feel better. We are all different and not every remedy or therapy will help everybody with the same health problem. Take for example allergies - they all work on the same principle when the body starts to defend itself against substances which are normally not harmful, yet the symptoms can be so different ranging from runny nose, itchy or weepy eyes, sneezing, rushes, eczema and digestive problems to name the few. It is therefore understandable that some remedies will work for some but not for others. A lot of people have said they tried so many remedies or therapies and nothing ever worked. Some therapies take longer to kick in and it is important to be patient and observe the changes, which are happening to your body. Often the most effective self-help techniques are the easiest ones. Think for example of the time when you try to imagine throwing all your negative thoughts and all your pain into the bin and getting rid of them. This is known as a visualization technique and you can imagine almost anything you wish; you can let your imagination work. Imagine yourself being strong, as a leader, as someone who can make it to the top of the mountain. Or think of yourself lying on the beach, sunbathing and the sun's energy traveling into each part of your body making you feel warm and energized. You might be amazed that by imagining it you can actually get all the benefits of it happening in real life. You could also consider autogenic training, where you will learn to relax and it might even help you go to sleep if you are experiencing problems with your sleep.
Try and find something that you enjoy, develop an interest or a hobby. You might enjoy a good story or just a cup of tea can be nicely spent just on your own. It is much easier to work hard at achieving something for which others will say well done. It is much harder accepting that because of your illness nobody will say well done for something you really wanted to achieve but could not. Nobody will praise you for coping with your illness so say it yourself each day.
"Well done for coping so well."
Praise yourself for any little achievement of the day no matter how small. If it helps put your favorite poem on the wall or any positive quotes to remind you every time you pass that place
Were you more positive today than yesterday? Then I would like to congratulate you. I send praise to all of you.
Learn how to exercise can help you. The problem with exercise when you are ill is that you do not feel like it because you experience too much pain, stiffness or lack of energy. But it is often exercising that helps to alleviate stiffness or muscular pain. It is important to find the right exercise for you, gentle exercise is more appropriate than anything vigorous and the rules are little and often. Be persistent; do not expect any immediate results immediately. Likewise it is important that you follow a healthy diet. You should certainly not be embarking on any drastic diets to lose weight. Some of the diets to lose weight can actually cause havoc to your health. Very often people who lose weight after dieting gain it back sooner or later. This is actually more dangerous to your health than maintaining the same weight at all times; the body has to deal with the skin constantly expanding and shrinking when people lose and gain weight too often. It is important to eat regularly. Small portions more often are healthier than big portions less frequently. It is crucial that all the food groups (carbohydrates, fats and proteins) are included in your diet.In this respect please note that diets, which only involve one of the food groups, can be very dangerous for your health. And naturally always consult your GP if you want to embark on any new diet plan.
- It is important to realize that you are the person who matters most
- Make yourself comfortable and do something you enjoy each day
- Praise yourself for all your little achievements
- Follow a healthy, well balanced diet and if possible try to do light exercise each day.
4. Learn how you can best help yourself feel better
Try and find out as much as you can about your particular health problem. Alternative therapies are a great way of harmonizing your energy and the practitioners at alternative therapy clinics will be more than happy to advise you on which therapy would be most suited for you. The clinic might also run courses that will help you to apply some methods on your own. Naturally you will not be able to do everything. It takes practitioners of acupuncture years of study and practice before mastering the skills in their field and you would certainly not be able to apply any of the techniques on your own. You can, nevertheless, learn about acupressure or reflexology points and apply them regularly yourself. You can find out about which point corresponds to which organ in your body and which points would be more beneficial to press for you, how frequently and in which sequences.
I try to practice acupressure or reflexology on myself regularly and am quite amazed how much sensitivity or pain I can feel in the points that represent the organs of my body which are not functioning too well. I get also slightly excited that I am a bit of an expert on the subject. I feel it works because of the sensitivity of the points and I can help others to apply the same techniques. If you do not feel like pressing reflexology points on your feet you can just walk without your shoes on grass, on sandy or pebbly beach. In the past when people did not wear shoes and with no hard surfaces their feet were constantly massaged in the same way that the principles of reflexology healing work. Stepping over small stones is very beneficial because you activate and massage all the reflexology points at the same time. And there is so much more you can do to help yourself.
- Learn from books or courses how you can help yourself (many local health authorities organize courses for people how to deal with any long term health condition)
- Give the techniques which are recommended to relieve your particular symptom a try
- Find out what works for you
- Stick to the remedies or self help techniques which work best for you and be persistent (naturally follow any breaks which are recommended - for example you are always advised to have a break from herbal treatments in regular intervals).
5. Concentrate on the present, do not dwell in the past or worry about the future.
Have you caught yourself ever saying, "If this did not happen I would not get myself in the state I am in. I should have done things differently and so on" Such claims might or might not be true, it does not really matter. What matters is that you try to ignore such thoughts because they will not help you advance in your life. You might be experiencing pain because someone has wronged you in the past. My sister keeps constantly reminding our mother how badly she brought her up and that she never had time for her, basically drawing attention to the mistakes our mother made. Some of these accusations might be true, others are not really justified but that is not important. What matters is that my sister should let go of these feelings of hurt otherwise she will always feel grudge against her mother and it will not help her advance in the relationship. In any case it is something, which happened in the past and can no longer be changed, so there is not much point trying to change it. If my sister really wanted to improve her relationship with our mother she should concentrate on ways how the relationship between them could be improved.
As a child I was sexually abused by my uncle, luckily for me he died when I was 14 years old. As I wanted to move on in my life I forgave him when he passed away, otherwise I would just live my life full of anger with images of what happened haunting me all the time. Such feelings of anger can sometimes completely dominate your life making you even ill. For your own sake it is important to let go of these ill feelings, this will naturally not be easy and you might need to seek help of a psychiatrist or a counselor. But it is important to free yourself of any such feelings. You cannot forget but you have to forgive so you can live a happier and more fulfilling life. If you ever experience disturbing thoughts from the past you can keep saying to yourself. "What happened in the past happened, I let it go, I let it go, I let it go, I shall now put it behind me and concentrate on the present. There are good things for me to build on so I can achieve my dream one day."
The present is the most important part of your life. Take a moment to reflect on how you feel. Can you experience the 'here and now? Can you sit down for 5 minutes to be in a calm state concentrating on deep breaths without any thoughts spreading to your mind? Unless you practiced this kind of meditation before I am sure you found this exercise difficult. Meditation techniques are very beneficial because they help us discover more who we are. That is not an easy matter in today's extremely stressful society.
Reflect now on the thoughts, which were springing into your mind. Did you worry about your problems for which you have no answer? This is completely normal. As a result of your illness or disability you might have less power to influence matters in your life. I myself often worry what will happen to my children, or what if my illness deteriorates quickly and so on. But such worries are useless; they will only make my life more difficult and I am learning not to worry about anything that might go wrong in the future. Worrying only helps us to let our worries come alive. Mothers often worry about their children being cold or catching a cold and would not let them play with cold water. Children often feel warmer than adults and it is therefore better just to take a jumper with you rather than forcing them to wear it. The funny think is that if children catch a cold in the majority of cases it is not because they were cold or got wet (even though this might increase their chances of catching a cold). Usually a virus spreads around and everybody has it at the same time.My husband always complains about rain, yet it is his hostile attitude towards rain that makes him more uncomfortable than the rain itself. At the end of the day a bit of rain that we can feel on our bodies is only beneficial for us in the same way as walking barefoot in the wet morning grass.
I know and have accepted that I shall never live into my nineties as my grandmother did but then what does it matter. I am hypothesizing about something, which would be happening a long time away from now. Instead I rather concentrate on this very moment making sure that I am enjoying life to the full, that I give the right support and guidance to my children and that I can see them grow into responsible citizens. Even though your life is or seems to you to be much harder than anybody else's do not imagine it to be harder. In our actions we often follow what our mind tells us to do. Make sure you give it positive commands. Do not worry about the future, sure you want to plan for it and see where you are going. It is only positive to have a dream or a challenge for your future. Your dream can, however only be achieved if you set yourself little challenges which you achieve day by day.
- Do not dwell in the past
- Forgive those who have wronged you
- Do not worry of what could go wrong in the future - just let anxiety and worry go and allow reality to happen instead
- Do not believe things will end badly.
6. Try to eliminate stress from your life
As we all know stress contributes greatly to many illnesses. Stress in small dosage is useful but on a large scale can be very negative.
When our body senses danger it prepares to flee in which case our heart rate increases. If we experience such states too often our health suffers as a result. The slower our heart rate the longer our life. Breathing exercises can help us calm down influencing our heart in a positive way. Take deep slow breaths to the count of 5.
Are you breathing properly? Let's make a test. Stand or sit straight in front of a mirror. Take one deep breath and watch yourself.
Did your shoulders move up? Then you are not breathing properly as you are breathing through your chest and not through your abdomen. Now put your hand on your abdomen and take some more breaths. Can you feel your hand move up and down? Then you are breathing correctly. Try and practice this deep breathing exercise each day for a few minutes. You will then start to adopt such breathing automatically throughout the day.
If you find it difficult to sleep then deep breathing can also help you to relax and go to sleep. Sleep is naturally very important. Try to go to bed and get up at the same time each day ensuring that you have at least eight hours' sleep.The need for the length of sleep will naturally vary from individual to individual. Try to free yourself from all worries or any anger, relax the hour before going to bed with a gentle music or a book, anything which will help you go to sleep better. Do not watch television just before going to bed and if at all possible, have your bedroom television free. Just think how parents put their small children to bed. They pamper them with a bath and once they are nice and cosy in bed they read them a bedtime story or sing a lullaby. We know it works for little children but we do not apply it to ourselves.
We should try and live in harmony with everybody else. This might not always be easy. I know myself that the relations in our neighborhood are rather tense. When I consider my family there is always an argument of one sort or another going on. The neighbors in our road always fight for parking spaces, especially during the weekends. One day our neighbor could not find a parking space so she parked her car in front of her garage but at the same time blocked an entrance to our second neighbor's garage. He did not like it and asked her to move the car. At the end they started to argue. The arguments ended up in violence with the police having to be involved.In such arguments it is difficult to judge who is to blame because both parties are equally guilty, but the lesson to learn is not to get involved in such arguments or learn how to deal with them constructively. If you are angry with somebody take a few deep breaths and explain calmly to the person why you are angry and what you would like the person to do instead. Do not swear at anybody or accuse them of being an idiot, the response you will be getting should be less hostile. Write down on a piece of paper something similar to the following quote.
"I can express my anger, irritability or rage politely and effectively. It does not matter who with or what the issue is." Do not forget that if you can't do so it is likely that you are constantly increasing your blood pressure which is not good for your heart.
Our neighbor has learnt a lesson not to park in front of the other neighbor's garage. Sometimes it is better to avoid conflictive situations even if it means an effort. In the case of our neighbor it is the inconvenience of parking her car a bit further away from her house and having to walk slightly further. But then walking is healthy; she might even be doing something for her health. Actually she is doing rather a lot of walking at the moment because she was drink driving and had her license taken away from her for a year.
When it comes to arguments and judging people I like to become non judgmental. Our neighbor no longer lives next to us but I have remained a good friend of hers. She has supported me incredibly well when I was at my lowest and all I am doing is praising her for that. She might have some faults but then we all do, and often it is impossible to put ourselves into other people's shoes and understand why they behave the way they do. Before I had my own children I sometimes used to see children who were really naughty, full of tantrums in the streets, and could not comprehend how their parents could let them behave in such an awful manner. But when I had my own children I finally realized that even they have their difficult moments. In such situations I would say to myself that there must be others who are judging me in the same way as I used the judge the parents of the naughty children.
New information and communication technologies are making our lives easier and especially people who are not very mobile benefit greatly from these. But there are naturally some very negative features. As well as encouraging a less healthy and more sedentary lifestyles modern technologies take the human touch away from us. Children find it more difficult to interact with each other when they spend hours on the computer and many families now are deciding to have their home computer and television free as it makes their family lives more stress free. Children might resist such idea first but later they become more creative and can interact better with their parents, siblings and friends. It might be an idea to review your use of modern technologies and possibly restrict their use, if at all possible. It is always nicer to meet your friends in person than just send e-mails to them.
I have also found that prayers can help you have a positive attitude and keep you peaceful. They work very much like hypnosis; you believe there is some higher spiritual being that is helping you overcome your problems. As a child I grew up in Prague under the communist regime. At that time you were not allowed to practice your religion and only could do so in secret. My family went to Church on Sundays, but because discussing matters was also not on the agenda under the communist regime, I never quite understood the concept of God till I was in my teens. By then the communist regime was breaking down. Since then I believed sometimes very strongly but I also, like everyone else, had my doubts at other times. When I feel better, I believe in God strongly, but when I feel ill, I can doubt his existence. Yet I know this is somehow wrong. You yourself might be going through very similar mixed feelings. But I am always assured that God will be there for me even if I doubted him that he will forgive me and be there for me even though I might occasionally doubt his existence. I once assembled some prayers and put them on a website. One energy healer said to me that the prayer page was full of energy. His comment reassured me that with good intentions you would always be surrounded by positive energy.
I pray simple prayers every day, just keeping it simple, thanking God for all the great things he gave me, teaching me to get on well with everybody else, not to bear a grudge against anybody. I have learned that God is inside each one of us, but it depends on each individual how much we actually notice him. Praying is all about making you a happier, healthier, wealthier person. It can also help you go to sleep.
It is also well known that people who worship God regularly live healthier, longer and happier lives. It is often the social contact and support from church members that contribute to this happiness in great amount. But beware of sects, who in God's name want to create evil, they recruit people and especially those vulnerable ones will say yes. If you know the Bible well and all God's teachings the sect member will not bother you. I remember after the fall of the communist regime the Czech sects that were until then forced to practice in secrecy, were recruiting their new members. Once my father invited them in because he did not know who these people were. When the cult associates found out that my father knew the Bible well, they left very quickly without bothering him ever again.
- Learn how to breath well and practice deep breathing exercises
- Relax before bedtime ensuring you get enough rest, going to bed and getting up at regular times
- Learn how to live in harmony by learning how to express anger in a constructive way
- Prayers can help you to live a stress free live as well as giving you hope and believe in yourself.
7. You are the maker of your own luck
Right at this moment you might be thinking that it is not in your power to improve your life in any way. Let me tell you that even if you think you have very little left there is still so much strength in you which you are not aware of and that I would like to help you discover.
The main clue to success is to start small, giving you manageable goals each day that will build on each other. Break your tasks into smaller chunks if your challenge is slightly larger. Many people make the mistake that when they have a brilliant idea they think big and want to see success overnight. I would never manage to write these strategies in just one day, I get tired quickly and have to rest but at the end I shall complete it if I write a little every day.
My son thinks he will be able to swim easily to the other side of the river. When he is in the middle, however he has to return because he is out of breath. He will manage it one day but must pursue his goal and practice swimming each day a bit further.One day his stamina will improve to make it all the way. He also wants to write series for television. But he does not realize that before aiming so high he has to have small success first then work hard for the big success. He would be much better off if he considered entering competitions of creative writing for his age group first. But at this moment he can only see fame, he cannot understand he has to work really hard to get to the top.
It is therefore important to take one step at a time. If it is an effort for you just to get out of bed and make breakfast perhaps this could be challenge number one for the rest of the week to get up by a certain time. Gradually and slowly add a few extra challenges as you go along. A the end of each day or week make a review of what you managed to achieve that you could not do previously. You could perhaps keep a diary and set yourself some targets for the day and review them later. I find keeping a diary very useful with my son. As the majority of children of his age he finds it difficult to plan his homework leaving them often till the end when there is not enough time left. The diary helps him to monitor what he has done and what he still has to do but it gives him also this essential skill of planning and organizing his day so he does not spend the whole day on the computer.Keep on reviewing your tasks and challenges and make sure that you do not set yourself too tough challenges which you then feel disappointed because you have not achieved them. Rather slightly adapt your challenges and make them easier, or if your tasks were too easy, set yourself more demanding goals. And do not be a perfectionist; it does not matter if the house is not absolutely 100% clean.I have got a friend who is always so worried about things going wrong when she invites her friends for dinner that at the end she is so stressed and exhausted. Friends are there to cheer you up, not to make you feel even more awful, they will most certainly not mind if everything is not absolutely 100% perfect. Do not therefore worry about things going wrong or that anything is not perfect.
If you want to work I believe you can find a job that suits you, will be enjoyable and will give you satisfaction. Ill or disabled people often feel depressed because they feel they cannot contribute to society as much as others. Companies are often discouraged from employing people with disabilities because they fear that such people will be absent regularly and not be as efficient as others suffering loss as a result even though by law employers must not discriminate against employees with disability. There is help at hand for you as there are organizations that will help you find a job that is suitable for you with training for the appropriate job. You might also enjoy other benefits such as reduced alternative therapy treatments, or start up money packages if you think of running your own business. Explore all that is available of which you can take advantage.
As mentioned previously it is important to think small.You might feel others have got an easy life and can prosper well without having to fight an illness or disability every day. First let me assure you that even the people who appear to have no problems can be flooded with them. I know you feel like you are a victim, but it is important to think of yourself as a winner or becoming one. Do not compare yourself to others. We are all unique individuals with different experiences, values or beliefs. If your neighbor was disadvantaged like you would he or she have achieved as much as you
You might still feel uneasy about the whole situation saying you are too ill to do any work. That is exactly how I felt not so long ago. The nature of my illness is such that I would not be able to turn up for any regular work. I have so much skill and ability yet I cannot use it even though I very much want to do something. I started to think whether I could work for myself on a self-employed basis. This would mean I could work when I feel a bit better and when I feel unwell I can just take it easy and relax. I speak and write 6 languages fluently so I could possibly do translations. Everyone around me is discouraging me because they believe it is a job that is not very financially rewarding. Yet I am not discouraged and am determined to work hard for it; most translation agencies only accept people with 3 or 4 years experience. But that does not discourage me. I am in the meantime translating adventure stories my uncle published in Czech after his journey to South America into English and this should give me some experience in translation.If I were healthy, I would naturally aim higher. It is nevertheless a great challenge for me.
Do not look for any reasons which would be stopping you from pursuing your realistic coal. People manage to find all kinds of excuses for things they have not done and should have done. As I am writing these strategies my life is certainly not straightforward. Yet I believe that tomorrow will be a better day and I will be able to continue and help great people like you achieve your dreams and be happy. I know things were tough for me and it took me a long time to finally find the right path. If I had a chance to read something similar to the 7 strategies I would have appreciated it very much and I hope that what you are reading is beginning to change your life for the better.
It is important to go only at a pace you are comfortable with. While you are patient and waiting for your dreams to materialize you are obviously doing all the right things that will help you to achieve your goal one day in the future.
In the past I watched films, where people who were involved in accidents causing them serious injuries made an incredible comeback.I always used to admire their strength and wished nothing of that nature would happen to me as I felt I would not be able to cope with it.Yet without this incredible strength such people would have no life at all.People who are blind develop all their other senses much better than we do, otherwise they would have to live in total darkness and isolation. I just wanted to show you that this incredible strength is in all of you and you have the capacity to use it to improve your life and the life of those around you. And do not forget - it is those around you who also help you enormously to pull through your difficult moments. One lady who became ill said there was not point for her to live on because she could not do what she was hoping to achieve. She just started to work in a nursery and only recently completed her course. But her family assured her that there is live for her only if she remains positive and that they are there to help her pull through it. Even though she can no longer work and has to rely on her family to help her she is happy because her family are there supporting her, she keeps herself positive and focused and is very proud of her children who learned to help their mum as much as possible.
If you think there is no such strength within you to change live for the better I am going to prove you wrong. On one sheet of paper write down all the negative aspects of your life, on another sheet reflect on the positive ones. Weigh them all up. You probably wrote more negative stuff quickly while the positive stuff only came up very slowly. Never mind, this is all about appreciating the entire positive side of your life now. The negative parts are hard, but throw the negative sheet in the bin. As you do so, imagine all these problems are locked up in the bin now and when you take the rubbish down to be collected imagine they are going with all the other rubbish into the landfill site. Every time the negative parts re-appear in your life try to imagine them going into the bin and away with the rest of the rubbish.
Let us instead concentrate on the positive now. If you only managed to write down very little let me help you to think of some more. When you are not feeling too good, it is difficult to see all the positive side of your life. But do you have a supportive family, a circle of friends, can you read, write, have access to the Internet, can you walk or have enough strength to push yourself in a wheelchair? If you have some of these you will be able to pursue your interests - perhaps studying something you enjoy, you can join like-minded people on the Internet or you can write about your problems and share your experience with others. To write about what bothers you helps and you never know your articles might be great and appear on websites for which you will earn some money. Nowadays there are so many opportunities thanks to the Internet, especially for people who are ill and disabled and cannot go to work on a daily basis. I always felt people with disabilities were so much closer to God and artistically gifted - they have the time to notice little things that busy people cannot. I am sure you have heard of artists who paint with their legs or their mouth and their paintings are truly marvelous. Would they have not had their disability they would probably get on with their everyday lives and they would never have discovered this special gift in them. There is a special gift in everybody and even you can discover it and make good use of it.
If you cannot continue in your current job or cannot achieve your career ambitions help those around you who will certainly appreciate your input or expertise. Or help those who are facing similar problems like you. If you have children help them to achieve their potential. They will appreciate it greatly and it will be a consolation to you that they will do well and may not only fulfill but also eclipse your hopes and dreams. Let them, however, decide for themselves what they would like to do.
If you stick with your realistic goal you will achieve it. Also do not always listen to your prospects that have been forecasted by doctors for the development of your illness. As mentioned earlier the same illness can behave differently in various individuals. If you were forecasted that it would probably be 3 years by which time you would be in a wheelchair do not fix it in your mind. Rather try to be positive and keep walking as much and as regularly as you can. The longer you keep it up, the longer you can do it. I have heard of people who were told by their doctors that their illness was not curable; however, they even adopted a different approach to treatment than suggested by their doctor and have cured their illness even though their doctor has given them only a few years of life.
- You can achieve your goals
- Think small; accept that you will have some bad days. Find ways how to overcome these and say tomorrow will be a better day
- Break bigger tasks into smaller chunks
- Stick up with your goal - do not give up
It is now exactly a year ago since I wrote these Strategies how to cope with illness and disability. Since then my live has improved even though the first 6 months of this last year were the toughest of my live. I am afraid during these 6 months I have completely forgotten about these Strategies and somehow never believed I would ever get better. But I did, perhaps because unconsciously I had these Strategies in my mind.
In the last couple of months I even started to work as an Invigilator, something I never dreamed I could do a year ago.And I am also thinking of helping out at my sons' school, I could use my skills and help perhaps some students prepare for their French or German exams. I am still thinking about becoming a translator one day but I have other very exciting plans as well. I see my life as very rich; I do so many different things I could not do if I had to work every day and doing the same thing over and over again must be boring. Well a couple of years ago I thought that being unable to go to work is the worst thing that can ever happen to anybody.
It is the belief which is very important. Just try to say the following in your head, "Life is very hard, life is very hard". Then relax, take some deep breaths and note how you feel.
Now do the same exercise again and instead of saying that life is hard, try and say something positive, such as, "I can take steps to make my life better and happier." Now relax again, take a few deep breaths and notice how you feel.
I am sure you felt better when you kept telling yourself that you can take steps to make your life better and happier.
I hope that you found reading the "Strategies how to cope with illness or disability" enjoyable and useful and that over time some of these strategies if not all will help you to improve the quality of your life and make you a happier person. If you are in doubt about anything please consult your doctor, especially if you want to embark on any new exercise, diet or treatment regime. I wish you all good luck.
Read more of our Tips for Newly Disabled
- 1 - Conquer Paralysis Now Challenge : $20M in Grants and Prizes : Conquer Paralysis Now (CPN) (2014/12/05)
- 2 - Overcriminalization of People with Disabilities Must Be Addressed in Criminal Justice Reform : Center for American Progress (2016/07/19)
- 3 - How Prison Solitary Confinement Harms People with Physical Disabilities : American Civil Liberties Union (2017/01/13)
- 4 - Usher Syndrome: Types, Causes and Treatment Options : Thomas C. Weiss (2015/09/18)
- 5 - Disability ID Cards: How and Where to Obtain One : Disabled World (2019/05/21)
- 6 - Nazis, Sterilization and Deaths of People with Disabilities : Thomas C. Weiss (2015/09/11)
- 7 - Focus on Your Abilities - Not Disabilities : Sandi Baker (2008/12/23)
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