U.S. Federal Legislation Prevents Organ Transplant Discrimination
Published : 2020-12-24
Author : National Down Syndrome Society - Contact: ndss.org
🛈 Synopsis : Charlotte Woodward Organ Transplant Discrimination Prevention Act prohibits discrimination against individuals based on their disability when seeking an organ transplant. There are misconceptions that people with disabilities can't manage the treatment needed after an organ transplant or wouldn't benefit from such an operation. State-level legislation enforcing non-discrimination policies for organ transplants has been passed in thirteen states...
The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, applauds the introduction of the Charlotte Woodward Organ Transplant Discrimination Prevention Act to uphold the rights of qualified organ transplant candidates who have a disability. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
Introduced by Congresswoman Jaime Herrera Beutler (R-WA) and Katie Porter (D-CA), the Charlotte Woodward Organ Transplant Discrimination Prevention Act prohibits discrimination against individuals based on their disability when seeking an organ transplant. This legislation would uphold and enforce rights established in the Americans with Disabilities Act of 1990.
"Despite federal protections, people with physical and intellectual disabilities are barred from receiving a life-saving organ in many states. This discrimination is a violation of their basic human rights," said NDSS Director of Government Relations Ashley Helsing . "Passage of the Charlotte Woodward Organ Transplant Discrimination Prevention Act will save countless lives of people in dire need of transplants."
If passed, the Charlotte Woodward Organ Transplant Discrimination Prevention Act will ensure that a person's capacity to comply with post-transplant treatment requirements is not a significant reason to deny them a transplant procedure. Furthermore, this bill requires that health care providers make policies, practices and procedures accessible to qualified recipients with disabilities.
The bill is named for Charlotte Woodward, an advocate with Down syndrome and member of the NDSS staff who received a life-saving heart transplant nearly nine years ago. Since then, she has advocated tirelessly to ensure others with Down syndrome and other disabilities have the same access to transplants.
"As one of the very few people in the world with Down syndrome who has had the opportunity to receive a life-saving heart transplant, I am so very, very grateful that people with disabilities will have the same opportunity as I in the future," said Charlotte Woodward, for whom the bill is named.
"In the past, too many precious lives were lost due to discrimination in organ transplantation. I am so very, very thankful for the generosity of my heart donor and that of her loving family. Her gift has allowed me to live my life to the fullest and to go on to advocate for others to be able to do the same. The passage of this bill will be a monumental step towards a more just world, and I am proud to play a part in it."
"There are misconceptions that people with disabilities can't manage the treatment needed after an organ transplant or wouldn't benefit from such an operation - and those claims are simply not true," Herrera Beutler said.
"Charlotte Woodward is a wonderful woman with Down syndrome who is also the namesake for this legislative solution. Charlotte has been sharing her experience of successfully receiving and managing a heart transplant in order to put an end to this discrimination and help more people receive the life-saving gift of organ donation. I'm proud to introduce legislation with my colleague, Rep. Katie Porter, to ensure that people with disabilities aren't turned away when they're in need of life-saving organ transplant."
State-level legislation enforcing non-discrimination policies for organ transplants has been passed in thirteen states, including:
- New Jersey
This federal legislation would reinforce rights protected under the Americans with Disabilities Act and end-organ transplant discrimination across the country.
NDSS has resources available to assist those willing to support non-discrimination in organ transplantation for people with disabilities. For more information, please visit https://www.ndss.org/advocate/ndss-legislative-agenda/healthcare-research/nondiscrimination-in-organ-transplantation-laws-toolkit/
Source/Reference: National Down Syndrome Society (ndss.org). Disabled World makes no warranties or representations in connection therewith. Content may have been edited for style, clarity or length.
Related Disability Information Documents
- 1: Idiopathic Pulmonary Fibrosis (IPF): Facts and Information : Information regarding Pulmonary Fibrosis including causes, symptoms, diagnosing, and IPF treatment options.
- 2: Disability ID Cards: How and Where to Obtain One : List of locations and contact information of places that provide Disability ID Cards, or similar forms of identification for people with disabilities.
- 3: U.S. Federal Legislation Prevents Organ Transplant Discrimination : Charlotte Woodward Organ Transplant Discrimination Prevention Act prohibits discrimination against individuals based on their disability when seeking an organ transplant.
- 4: Zero Project: 337 Nominations from 98 Countries : The Zero Project nominations demonstrate there is a global movement of practitioners implementing inclusive education helping children with all kinds of disabilities around the world.
- 5: Zero Project and Convention on Rights of Persons with Disabilities : The mission of the Zero Project is to work for A World Without Barriers in accordance with the principles of the U.N. Convention on the Rights of Persons with Disabilities (CRPD).
You're reading Disabled World. Be sure to check out our homepage for further informative disability news, reviews, exclusive stories and how-tos. You can also follow Disabled World on social media sites such as Twitter, Facebook, and LinkedIn.
Disclaimer: Disabled World provides general information only. Materials presented are in no way meant to be a substitute for professional medical care by a qualified practitioner, nor should they be construed as such. Any 3rd party offering or advertising on disabled-world.com does not constitute endorsement by Disabled World. View our Advertising Policy for further information. Please report outdated or inaccurate information to us.
Journal: Disabled World. Language: English (U.S.). Author: National Down Syndrome Society. Electronic Publication Date: 2020-12-24. Title: U.S. Federal Legislation Prevents Organ Transplant Discrimination, Source: <a href=https://www.disabled-world.com/disability/organ-transplant.php>U.S. Federal Legislation Prevents Organ Transplant Discrimination</a>. Retrieved 2021-04-11, from https://www.disabled-world.com/disability/organ-transplant.php - Reference: DW#37-13911.