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Social Security Compassionate Allowance Conditions List

Published: 2009-02-24 - Updated: 2021-08-16
Author: Disabled World | Contact: Disabled World (Disabled-World.com)

Synopsis: Compassionate allowance benefits are for diseases and other medical conditions that invariably qualify under the listing of impairments. New Compassionate Allowances conditions - Desmoplastic Small Round Cell Tumors, GM1 Gangliosidosis - Infantile and Juvenile Forms, Nicolaides-Baraister Syndrome, Rubinstein-Tybai Syndrome, Secondary Adenocarcinoma of the Brain - recently added. Compassionate Allowance initiative will fast-track applications for social Security disability for applicants whose medical conditions are very severe.

Main Digest

Compassionate allowances are a way of quickly identifying diseases and other medical conditions that clearly qualify for Social Security and Supplemental Security Income disability benefits.

Related

The compassionate allowances list allows the agency to electronically target and make speedy decisions for the most obviously disabled individuals. If a claimant has a condition on the Compassionate Allowance list the SSA will approve their disability in as little as 10 days, with limited medical information which proves their diagnosis.

Quick Facts

Rare Diseases

Many people with rare diseases encounter delays of months or even years when they apply for assistance through SSA. Compassionate allowances will allow Social Security to quickly target the most obviously disabled individuals for allowances based on objective medical information that we can obtain quickly.

Often, people with rare diseases initially are denied assistance but later reapply, often with the help of an attorney, and ultimately are approved. The delay and expense of attorney fees can be overwhelming to people who are already coping with serious illness, major medical expenses, and loss of ability to perform normal activities, including work.

Obligation

U.S. Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards. The Compassionate Allowance initiative will fast-track applications for social Security disability for applicants whose medical conditions are very severe. Currently, many people with rare diseases experience devastating delays when they apply for social Security assistance because those making the decisions are not familiar with their diseases.

The initial list of Compassionate Allowance conditions was developed as a result of information received at public outreach hearings, public comment on an Advance Notice of Proposed Rule-making, comments received from the Social Security and Disability Determination Service communities, and the counsel of medical and scientific experts. Also, we considered which conditions are most likely to meet our current definition of disability.

The Program is Just a Start

There are 6,000 to 7,000 known rare diseases, many of which could qualify for compassionate allowance. NORD is committed to working with SSA to bring many more rare diseases under this program. The list below will be expanded over time as more fast track medical conditions are approved.

A B C D E F G H I J K L M N O P R S T U W X Z

A

B

C

D

  • Degos Disease
  • DeSanctis Cacchione Syndrome
  • Desmoplastic Mesothelioma
  • Desmoplastic Small Round Cell Tumors
  • Dravet Syndrome
  • Duchenne Muscular Dystrophy - Adult

E

F

G

H

I

J

  • Junctional Epidermolysis Bullosa, Lethal Type
  • Juvenile Onset Huntington Disease
  • Joubert Syndrome
  • Jervell and Lange-Nielsen Syndrome

K

L

M

N

O

P

R

  • Refractory Hodgkin Lymphoma
  • Renpenning Syndrome
  • Rett Syndrome
  • Retinopathy of Prematurity - Stage V
  • Roberts Syndrome
  • Revesz Syndrome
  • Rhabdomyosarcoma
  • Rhizomelic Chondrodysplasia Punctata
  • Richter Syndrome
  • Rubinstein-Tybai Syndrome

S

  • Salivary Tumors
  • Sandhoff Disease
  • SCN8A Related Epilepsy with Encephalopathy
  • Small Cell Cancer (of the Large Intestine, Ovary, Prostate, or Uterus)
  • Small Cell Lung Cancer
  • Small Intestine Cancer - with distant metastases or inoperable, unresectable or recurrent
  • Spinal Muscular Atrophy (SMA) - Types 0 And 1
  • Stomach Cancer - with distant metastases or inoperable, unresectable or recurrent
  • Sanfilippo Syndrome
  • Secondary Adenocarcinoma of the Brain
  • Subacute Sclerosis Panencephalitis
  • Single Ventricle
  • Severe Combined Immunodeficiency - Childhood
  • Seckel Syndrome
  • Sjogren-Larsson Syndrome
  • Small Cell Cancer of the Thymus
  • Soft Tissue Sarcoma- with distant metastases or recurrent
  • Sinonasal Cancer
  • Schindler Disease Type 1
  • Smith Lemli Opitz Syndrome
  • Spinal Nerve Root Cancer- metastatic or recurrent
  • Stiff Person Syndrome
  • SYNGAP1-related NSID

T

U

V

  • Vanishing White Matter Disease (CACH) - Infantile and Childhood Onset Forms

W

X

Z

A B C D E F G H I J K L M N O P R S T U W X Z

For more information about the program, including a current up to date list of all compassionate allowance conditions, please visit www.socialsecurity.gov/compassionateallowances

 

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Cite This Page (APA): Disabled World. (2009, February 24). Social Security Compassionate Allowance Conditions List. Disabled World. Retrieved October 21, 2021 from www.disabled-world.com/disability/social-security/usa/compassionate-allowance.php