Standard of Care for Breast Cancer Survivors with Lymphedema

There Isn't a National Consensus for Diagnosing Lymphedema and When to Start Treating It

Author: University of Missouri-Columbia
Published: 2010/02/17 - Updated: 2023/05/01
Contents: Summary - Introduction - Main - Related

Synopsis: Researchers collaborate to develop a standard of care for breast cancer survivors with lymphedema. University of Missouri researchers are leading the American Lymphedema Framework Project (ALFP), a national, multi-disciplinary collaboration to develop comprehensive guidelines for the assessment, treatment, and management of lymphedema. There isn't a clear, national consensus for how to diagnose lymphedema and when to start treating it. The ALFP collaborators aim to document a standard of care reflecting a consensus on best practices that will help solve these problems.

Introduction

Lymphedema, a chronic swelling condition that can appear after breast cancer surgery, is a risk for 1.3 million breast cancer survivors. Although lymphedema can cause lifelong swelling in the arms, back, neck and chest, there is no national standard of diagnosis or care. Now, University of Missouri researchers are leading the American Lymphedema Framework Project (ALFP), a national, multi-disciplinary collaboration to develop comprehensive guidelines for the assessment, treatment, and management of lymphedema.

Main Digest

"We can't cure lymphedema today - we can only manage it," said Jane Armer, MU nursing professor and director of the project at the MU Ellis Fischel Cancer Center. "Lymphedema is a complex, chronic condition. Currently, there are inconsistent approaches to care for lymphedema, and often the most common form of self-management is to not treat it at all."

The ALFP, established in 2008, has two main goals:

The ALFP researchers plan to publish the best practices document in 2011.

"Part of why there isn't a standard of care is the lack of reliance on current evidence by health practitioners and third party payers, which in turn causes problems with reimbursement from health insurance companies. Many people with lymphedema have to pay out-of-pocket for care," Armer said. "There isn't a clear, national consensus for how to diagnose lymphedema and when to start treating it. The ALFP collaborators aim to document a standard of care reflecting a consensus on best practices that will help solve these problems."

Researchers, including those at MU, have found that the most effective method of care for lymphedema is complete de-congestive physiotherapy, in which therapists use specialized lymphatic massage techniques to reduce protein-rich fluid buildup. Bandages and compression garments also help to reduce swelling.

One of Armer's innovations at MU is measuring patients' arms with a perometer, a machine that was first used to fit garments for swollen limbs. First implemented in a research setting at MU, the machine has a large optoelectric frame that glides over a patient's arm, scans its image and records an estimated limb volume reading. Perometer measurement is as, or more, accurate than several previous methods to measure arm circumference and volume. The machine is now used in about 20 sites across the country.

Highlights of MU Sinclair School of Nursing research from the past 10 years reveal that there is a 40 percent higher risk of developing lymphedema in women with a body mass index (BMI) classified as overweight or obese compared to normal-weight women. The researchers also found that younger patients may have less occurrence of the condition but tend to report more symptoms, which could be a result of psychological and aging-related factors.

"In addition to our previous findings, we're currently studying whether there are any genetic factors that increase the risk of lymphedema," Armer said. "A pilot study now underway and a proposed multi-site research study will look at the possibility of genetic predisposition for secondary lymphedema. The results could be applied to cancer treatment in which surgery and radiation affect the lymphatic system."

Attribution/Source(s):

This quality-reviewed publication titled Standard of Care for Breast Cancer Survivors with Lymphedema was selected for publishing by Disabled World's editors due to its relevance to the disability community. While the content may have been edited for style, clarity, or brevity, it was originally authored by University of Missouri-Columbia and published 2010/02/17 (Edit Update: 2023/05/01). For further details or clarifications, you can contact University of Missouri-Columbia directly at umsystem.edu Disabled World does not provide any warranties or endorsements related to this article.

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Cite This Page (APA): University of Missouri-Columbia. (2010, February 17 - Last revised: 2023, May 1). Standard of Care for Breast Cancer Survivors with Lymphedema. Disabled World. Retrieved June 13, 2024 from www.disabled-world.com/health/cancer/breast/lymphedema-care.php

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