Facts and Myths About Epilepsy

Author: VA Epilepsy Center of Excellence
Published: 24 Nov 2010 - Updated: 5 Jun 2023

Contents: Synopsis - Introduction - Main - Related Publications

Synopsis: The VA Epilepsy Center of Excellence list of myths about epilepsy that people still believe and the facts to bust them.

Epilepsy has affected millions of people throughout history. At one time called "the Falling Disease," it has been attributed to an array of causes, including witchcraft, demon possession, magic and other supernatural events.

Introduction

While modern societies understand that epilepsy in a physical medical condition, health care providers at the VA Maryland Health Care System say that people still embrace myths about epilepsy.

Main Content

November is Epilepsy Awareness Month. From kings to beggars, epilepsy has affected millions of people throughout history. At one time called "the Falling Disease," it had been attributed to an array of causes, including witchcraft, demon possession, magic and other supernatural events.

Ancient physicians, including Atreya of India and Hippocrates of Greece, challenged its connection to supernatural events, both recognizing that the seizures associated with epilepsy indicate a brain dysfunction. Aristotle of Greece was the first to link epilepsy with genius. While modern societies understand that epilepsy in a physical medical condition, health care providers at the VA Maryland Health Care System say that people still embrace myths about epilepsy.

Regina McGuire wants to debunk the myths about epilepsy. She says, "Superstitions persist - and there are a lot of them. Unfortunately people with epilepsy continue to face discrimination and prejudice."

The VA's Epilepsy Center of Excellence, says it's time to bust the myths! Below are a handful of myths about epilepsy that people still believe and the facts to bust them:

MYTH: Epilepsy is contagious, or you have to be born with it.

FACT: A medical condition that is not contagious, epilepsy often first appears in children and young adults, although anyone can develop epilepsy at any time. It is a side effect of traumatic brain injury, which can happen from car accidents, falls, fights, or any time the brain suffers a tremendous blow. Veterans can develop epilepsy after a traumatic brain injury sustained in combat from explosions or from any number of scenarios.

MYTH: People with epilepsy are disabled, can't drive and can't work.

FACT: People with the condition have the same range of abilities and intelligence as anyone else. Some have severe seizures and cannot work; others are successful and productive in challenging careers. People with seizure disorders are found in all walks of life and at all levels of business, government, the arts and the professions.

MYTH: People with epilepsy can't be parents.

FACT: Having epilepsy does not interfere with the reproductive process of either men or women. It is a medical condition and affects people in varying degrees.

MYTH: People with epilepsy swallow their tongue when experiencing a seizure.

FACT: Nothing should be placed in the person's mouth during a seizure. While it is not physically possible to swallow one's tongue, if the tongue is relaxed, it could block the breathing passage. Therefore, the person should be turned on his side so the tongue falls away and to the side.

MYTH: A person having a seizure should be held down.

FACT: Don't try to restrain the person; this might cause injury. Instead, move anything hard or sharp out of the way, and place something soft under the person's head.

MYTH: Always call an ambulance when a person has a seizure.

FACT: Unless the seizure last more than 5 minutes, or is followed by a series of seizures, it is seldom necessary to call an ambulance. There are medications that can be used to stop prolonged seizures, but overall, let the seizure run its course.

MYTH: You can make a person "snap out" of a seizure.

FACT: A seizure has to run its course, unless lasting longer than 5 minutes, then medical attention is needed.

MYTH: With today's medication and technology, epilepsy is largely a solved problem.

FACT: Epilepsy is a chronic medical problem that, for many people, can be successfully treated. Unfortunately, treatment doesn't work for everyone and there's a critical need for more research.

The VA Maryland Health Care System's Epilepsy Center of Excellence coordinating center for the Northeast region is beginning a program for epilepsy treatment that will include surgery and vagal nerve stimulation. Collaboration with the University of Maryland Epilepsy Center will continue for clinical and educational programs, as well as epilepsy focused research projects.

Attribution/Source(s): This quality-reviewed publication was selected for publishing by the editors of Disabled World (DW) due to its relevance to the disability community. Originally authored by VA Epilepsy Center of Excellence and published on 24 Nov 2010, this content may have been edited for style, clarity, or brevity.