The Hydranencephaly awareness ribbon color is blue. The month of June is Hydranencephaly Awareness Month. The reason June was chosen was to honor Brayden Alexander Harper, born on June 30, 2008.
Hydranencephaly possesses isolated occurrences, affecting less than 1 in 10,000 births worldwide and officially classifying hydranencephaly as a rare disorder by affecting fewer than 1 in 250,000 in the United States.
Infants with hydranencephaly are presumed to have a reduced life expectancy, with a survival of several weeks to months. Rarely, patients with prolonged survival have been reported, but these infants may have had other neurologic conditions that mimicked hydranencephaly, such as massive hydrocephalus or holoprosencephaly.... Prolonged survival up to 19 years can occur with hydranencephaly, even without rostral brain regions, with isoelectric electroencephalograms, and with absent-evoked potentials. (www.ncbi.nlm.nih.gov/pubmed/10963978)
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