Palliative and End of Life Care: Facts and Guidance: Publications and Documents
Summary
Disabled World's End of Life and Palliative Care Information category offers a range of publications, including research papers, observational studies, announcements, and notifications, addressing diverse topics such as ethical and religious barriers to medical aid in dying, the impact of writing therapy for cancer patients, proposed changes to medical assistance in dying legislation, and defining wisdom at the end of life. These articles often provide data, analysis, and insights that can be useful for individuals with disabilities, seniors, and their caregivers, as well as medical professionals, by shedding light on important considerations, decisions, and support systems related to end-of-life care.Searching the Database
The data table below lists items that may have been updated or revised, but the table defaults to sorting by descending publication date; you can search and sort by clicking column headers (JavaScript required). Items in this category are also distributed via our Palliative and End of Life Care: Facts and Guidance RSS feed.
| Title and Description | Ed | Publish Revised |
|---|---|---|
| Exploring the Prevalence and Impact of Ethical and Religious Barriers to Medical Aid in Dying Paper finds 26% of physician respondents reported ethical or religious barriers to participating in medical aid in dying, but many willing to engage in discussion with patients and provide referrals for care. | ||
| Writing Therapy Helps Late-Stage Cancer Patients Cope Peer-reviewed CU Boulder pilot trial finds written exposure-based coping (EASE) reduces trauma, anxiety, depression, and fear in late-stage cancer patients. | ✓ ✓ | |
| Proposed Changes to Medical Assistance in Dying Legislation : Canadian Government Medical Assistance In Dying (MAID) is a complex and deeply personal issue. Article outlines reintroduced proposed changes to Canada's Criminal Code provisions on MAID. | ||
| Palliative Care Findings on Caregiver Depression, LGBT Partners, Moral Distress Major findings from the latest research on hospital palliative care according to study published in the Journal of Hospital Medicine, an official publication of the Society of Hospital Medicine. | ||
| How Terminal Illness Changes Wisdom in Hospice Patients UC San Diego researchers study how hospice patients define wisdom at end of life, finding terminal illness transforms understanding through acceptance and growth. | ✓ ✓ | |
| Significant Blood Pressure Drop Precedes Death by Over a Decade Research shows blood pressure in seniors gradually begins to decrease about 14 or so years before their death. | ||
| How Do Doctors Make Decisions When Managing Care for Critically & Terminally Ill Patients? Study examined intubation decision-making process for 73 hospital-based doctors from 3 academic medical centers. | ||
| End-of-life Care for Seniors in Nursing Homes - Call to Action IOM gathered experts in care of older adults to put together a framework and principles for improving end-of-life care. | ||
| Bill to Charge Doctors with Homicide for Providing Aid in Dying Defeated Bipartisan group of legislators voted 51 to 49 to reject bill HB328, which opponents call The Physician Imprisonment Act. | ||
| Disability Advocates Preparing to Oppose Assisted Suicide Bills Disability advocates prepared to oppose flurry of state assisted suicide bills being introduced in 2015. | ||
| City of West Hollywood Passes Death with Dignity Resolution West Hollywood city council voted unanimously on resolution urging Los Angeles county district attorney to de-prioritize death with dignity prosecutions. | ||
| US Health System Not Designed to Meet Patients Nearing End of Life Needs U.S. health care system not designed to meet needs of patients nearing end of life and those of their families - major changes to the system are necessary. | ||
| Questions to Discuss with Parents About Their End-of-Life Care Article suggests topics that can be discussed with aging parents in regards to end of life care and their final wishes. | ||
| Psychiatric Advance Directives (PAD) Information and facts regarding psychiatric advance directive law for people with psychiatric illness or any other form of medical condition. | ||
| Hospice Workers and Physician Assisted Death Laws Hospice workers who provide end of life care often struggle with beliefs and actions when dealing with a concept they traditionally oppose. | ||
| Vermont Death-with-Dignity Law New Vermont law will let dying and mentally competent people determine when they have endured enough suffering and empowers them to end their lives with dignity. | ||
| Nursing Home Sued for Violating End-of-Life Directive A woman is suing a Lakeland hospital and nursing home, claiming her frail, 91-year-old mother's wishes were violated when aggressive, traumatic Cardio Pulmonary Resuscitation (CPR) was imposed upon her despite a Do Not Resuscitate order. | ||
| Meeting Standards for Good Care Near the End of Life The book separates fact from fiction, clarifying mis-perceptions that can lead to problems or conflict. | ||
| Family Tensions and Spiritual Turmoil in End-of-Life Care This article examines faith, family, and palliative care, offering insights into spiritual struggles and comfort for seniors and the disabled at life's end. | ✓ ✓ | |
| Early End of Life Care Discussion Equals Less Aggressive Care Later Study reports earlier discussions about EOL care preferences strongly associated with less aggressive care and increased use of hospice care for patients with advanced cancer. | ||
| Facebook Organ and Tissue Donation Feature Facebook introduces feature that lets people state their wishes to become donors in an attempt to reduce long waiting lists for organs and tissue. | ||
| Health-care Costs at End of Life Often Exceeds Total Assets Researchers find a quarter of Medicare recipients spend more than total value of their assets on out-of-pocket healthcare expenses during the last 5 years of life. | ||
| Pancreatic Cancer - Making Hard Choices Examines whether patients should spend a large amount of the time they have left undergoing aggressive treatment for only a brief period of additional life. | ||
| Do Not Resuscitate Rights for Developmentally Challenged and Seniors Calls to work with societies and advocacy groups for developmentally disabled to develop policies and ensure dignity at time of death for all individuals. | ||
| Disability Activists Urge Georgia Supreme Court to Uphold Prosecution of Final Exit Network The activists are urging the state Supreme Court to uphold the prosecution of members of Final Exit Network. | ||
| End-of-life Discussions Do Not Affect Survival Rate Study shows patients who talk with their physicians about end-of-life care have similar survival rates as patients who do not have these discussions. | ||
| End of Life Discussions for Heart Failure Palliative care for advanced heart failure patients and reevaluating when a physician should discuss a patient's goals to determine treatment. | ||
| Pacific NW More Supportive of End of Life Care Options Support for palliative care options is even stronger, with nearly all Washington and Oregon voters saying it is important to have access to palliative care. | ||
| Oregon Creation to Help Patients with Advanced Illness The POLST program was created to honor the treatment wishes of patients with advanced progressive illness or frailty. | ||
| Two-Thirds of Children in Palliative Care Programs Live Longer than a Year The average life span was longer than expected and the study results help emphasize that children receiving palliative care services are living with grave life threatening conditions. | ||
| Awareness about End-of-Life Care is Essential Private Conversations and Public Discourse is a call to action that encourages a national agenda for consumer engagement in end-of-life issues. | ||
| End-of-Life Health Care Treatment - Have Your Say Countless families have found themselves in similar situations burdened with making difficult end-of-life health care decisions for loved ones of all ages. | ||
| Idaho Bill Forces Dying Patients to Go Doctor Shopping Idahoans and their families may soon have to go doctor shopping from their death beds. | ||
| Veterans and End of Life Care The Hospice Foundation of America has released Veterans and End-of-Life Care a free online webinar written by Deborah Grassman. | ||
| Aging and End-of-Life Challenges in LGBT Community The Hospice Foundation of America aging and end-of-life challenges in the Lesbian Gay Bisexual and Transgender (LGBT) community. | ||
| Creating a Living Will and Power of Attorney - Your Final Say Examines the benefits of having a living will and granting power of attorney. | ||
| Global Quality of Death Index - USA in 9th Place Quality of Death Index ranks countries according to their provision of end-of-life care. | ||
| End-of-life Care in Hospital Patients admitted to a teaching hospital for an end-of-life illness generally receive high-quality medical care. | ||
| Right to Die Billboards Appear Across Three States Final Exit Network launched right-to-die billboards in California, New Jersey, and Florida to raise awareness on end-of-life choice and death with dignity. | ✓ ✓ | |
| Does the U.S. Need to Ration Costly End-of-Life Care Should the government spend less on costly end-of-life procedures and instead use these resources to care for more patients. | ||
| End-of-life Care Must Reflect Patient Values and Wishes Improved decision-making in the use of feeding tubes for hospitalized nursing home residents with advanced dementia. | ||
| Doctors Opinions not Always Welcome in Life Support Decisions Caregivers of critical care patients prefer doctors to keep their opinions on life support decisions to themselves. |
Key: the first check mark indicates the publication carries an editor's note; the second indicates a footnote.
Note: Disabled World compiles disability-related publications as a resource. Inclusion does not imply endorsement by Disabled-World.com. To submit disability-related articles and peer-reviewed manuscripts and papers, ensure submissions comply with our guidelines. For questions, please contact us.
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