End of Life and Palliative Care Information Document List

Summary: Our library below features 40 published articles, research papers, and documents from the Disabled World End-of-Life - Palliative Care category. Although some of these documents may have since been updated, re-written, replaced, or revised, they are sorted by their original publish date. The most recent publications are listed at the top of the table with older articles being listed in descending order by the date they were created. You can also receive our latest communications as soon as they are released by subscribing to our End-of-Life - Palliative Care RSS feed.

End-of-Life - Palliative Care Publications

Proposed Changes to Medical Assistance in Dying Legislation : Canadian Government
(Announcement / Notification) Medical Assistance In Dying (MAID) is a complex and deeply personal issue. Article outlines reintroduced proposed changes to Canada's Criminal Code provisions on MAID.
Publish Date: 2020/10/07 - Updated: 2023/09/27

Palliative Care Findings on Caregiver Depression, LGBT Partners, Moral Distress
Major findings from the latest research on hospital palliative care according to study published in the Journal of Hospital Medicine, an official publication of the Society of Hospital Medicine.
Publish Date: 2018/02/20

Defining the Changing Nature of Wisdom at the End of Life
Researchers create consensus definition of wisdom as a complex trait with several inter-related components, such as compassion, emotional regulation, spirituality and tolerance.
Publish Date: 2018/01/25

Blood Pressure Begins to Decline 14-18 Yrs Before Death
Research shows blood pressure in seniors gradually begins to decrease about 14 or so years before death.
Publish Date: 2017/12/05 - Updated: 2017/12/15

How Do Doctors Make Decisions When Managing Care for Critically & Terminally Ill Patients?
(Study) Study examined intubation decision-making process for 73 hospital-based doctors from 3 academic medical centers.
Publish Date: 2017/12/05 - Updated: 2023/09/17

End-of-life Care for Seniors in Nursing Homes - Call to Action
IOM gathered experts in care of older adults to put together a framework and principles for improving end-of-life care.
Publish Date: 2015/02/19 - Updated: 2017/06/28

Bill to Charge Doctors with Homicide for Providing Aid in Dying Defeated
Bipartisan group of legislators voted 51 to 49 to reject bill HB328, which opponents call The Physician Imprisonment Act.
Publish Date: 2015/02/18

Disability Advocates Preparing to Oppose Assisted Suicide Bills
Disability advocates prepared to oppose flurry of state assisted suicide bills being introduced in 2015.
Publish Date: 2015/01/15

City of West Hollywood Passes Death with Dignity Resolution
West Hollywood city council voted unanimously on resolution urging Los Angeles county district attorney to de-prioritize death with dignity prosecutions.
Publish Date: 2014/11/21

US Health System Not Designed to Meet Patients Nearing End of Life Needs
U.S. health care system not designed to meet needs of patients nearing end of life and those of their families - major changes to the system are necessary.
Publish Date: 2014/09/18 - Updated: 2021/05/18

Questions to Discuss with Parents About Their End-of-Life Care
Article suggests topics that can be discussed with aging parents in regards to end of life care and their final wishes.
Publish Date: 2014/07/22

Psychiatric Advance Directives (PAD)
Information and facts regarding psychiatric advance directive law for people with psychiatric illness or any other form of medical condition.
Publish Date: 2014/03/05 - Updated: 2021/08/30

Hospice Workers and Physician Assisted Death Laws
Hospice workers who provide end of life care often struggle with beliefs and actions when dealing with a concept they traditionally oppose.
Publish Date: 2013/07/22 - Updated: 2022/01/23

Vermont Death-with-Dignity Law
New Vermont law will let dying and mentally competent people determine when they have endured enough suffering and empowers them to end their lives with dignity.
Publish Date: 2013/05/20 - Updated: 2022/02/10

Nursing Home Sued for Violating End-of-Life Directive
A woman is suing a Lakeland hospital and nursing home, claiming her frail, 91-year-old mother's wishes were violated when aggressive, traumatic Cardio Pulmonary Resuscitation (CPR) was imposed upon her despite a Do Not Resuscitate order.
Publish Date: 2013/05/15 - Updated: 2021/11/18

Meeting Standards for Good Care Near the End of Life
The book separates fact from fiction, clarifying mis-perceptions that can lead to problems or conflict.
Publish Date: 2013/05/09

Loss of Faith and Family Struggles when Relative Dying
Examining family struggles with anger and forgiveness when relative is dying including relationships with God and faith.
Publish Date: 2013/02/18 - Updated: 2022/02/13

Early End of Life Care Discussion Equals Less Aggressive Care Later
Study reports earlier discussions about EOL care preferences strongly associated with less aggressive care and increased use of hospice care for patients with advanced cancer.
Publish Date: 2012/11/15 - Updated: 2022/01/14

Facebook Organ and Tissue Donation Feature
Facebook introduces feature that lets people state their wishes to become donors in an attempt to reduce long waiting lists for organs and tissue.
Publish Date: 2012/09/12 - Updated: 2021/11/08

Health-care Costs at End of Life Often Exceeds Total Assets
Researchers find a quarter of Medicare recipients spend more than total value of their assets on out-of-pocket healthcare expenses during the last 5 years of life.
Publish Date: 2012/09/08 - Updated: 2022/02/08

Pancreatic Cancer - Making Hard Choices
Examines whether patients should spend a large amount of the time they have left undergoing aggressive treatment for only a brief period of additional life.
Publish Date: 2012/08/25

Do Not Resuscitate Rights for Developmentally Challenged and Seniors
Calls to work with societies and advocacy groups for developmentally disabled to develop policies and ensure dignity at time of death for all individuals.
Publish Date: 2012/07/24 - Updated: 2021/08/18

Disability Activists Urge Georgia Supreme Court to Uphold Prosecution of Final Exit Network
The activists are urging the state Supreme Court to uphold the prosecution of members of Final Exit Network.
Publish Date: 2011/11/07

End-of-life Discussions Do Not Affect Survival Rate
Study shows patients who talk with their physicians about end-of-life care have similar survival rates as patients who do not have these discussions.
Publish Date: 2011/09/29 - Updated: 2018/01/26

End of Life Discussions for Heart Failure
Palliative care for advanced heart failure patients and reevaluating when a physician should discuss a patient's goals to determine treatment.
Publish Date: 2011/09/20 - Updated: 2022/07/13

Pacific NW More Supportive of End of Life Care Options
Support for palliative care options is even stronger, with nearly all Washington and Oregon voters saying it is important to have access to palliative care.
Publish Date: 2011/07/07

Oregon Creation to Help Patients with Advanced Illness
The POLST program was created to honor the treatment wishes of patients with advanced progressive illness or frailty.
Publish Date: 2011/06/16

Two-Thirds of Children in Palliative Care Programs Live Longer than a Year
The average life span was longer than expected and the study results help emphasize that children receiving palliative care services are living with grave life threatening conditions.
Publish Date: 2011/05/10

Awareness about End-of-Life Care is Essential
Private Conversations and Public Discourse is a call to action that encourages a national agenda for consumer engagement in end-of-life issues.
Publish Date: 2011/03/31

End-of-Life Health Care Treatment - Have Your Say
Countless families have found themselves in similar situations burdened with making difficult end-of-life health care decisions for loved ones of all ages.
Publish Date: 2011/03/31

Idaho Bill Forces Dying Patients to Go Doctor Shopping
Idahoans and their families may soon have to go doctor shopping from their death beds.
Publish Date: 2011/03/31

Veterans and End of Life Care
The Hospice Foundation of America has released Veterans and End-of-Life Care a free online webinar written by Deborah Grassman.
Publish Date: 2011/02/13 - Updated: 2011/03/31

Aging and End-of-Life Challenges in LGBT Community
The Hospice Foundation of America aging and end-of-life challenges in the Lesbian Gay Bisexual and Transgender (LGBT) community.
Publish Date: 2011/02/09 - Updated: 2022/06/09

Creating a Living Will and Power of Attorney - Your Final Say
Examines the benefits of having a living will and granting power of attorney.
Publish Date: 2010/07/16 - Updated: 2014/03/04

Global Quality of Death Index - USA in 9th Place
Quality of Death Index ranks countries according to their provision of end-of-life care.
Publish Date: 2010/07/14 - Updated: 2011/03/31

End-of-life Care in Hospital
Patients admitted to a teaching hospital for an end-of-life illness generally receive high-quality medical care.
Publish Date: 2010/06/29 - Updated: 2011/03/31

Right to Die Billboards
Final Exit Network Right-to-Die Billboards Appear in California New Jersey and Florida.
Publish Date: 2010/06/16 - Updated: 2016/03/18

Does the U.S. Need to Ration Costly End-of-Life Care
Should the government spend less on costly end-of-life procedures and instead use these resources to care for more patients.
Publish Date: 2010/03/16 - Updated: 2011/03/31

End-of-life Care Must Reflect Patient Values and Wishes
Improved decision-making in the use of feeding tubes for hospitalized nursing home residents with advanced dementia.
Publish Date: 2010/02/09 - Updated: 2011/03/31

Doctors Opinions not Always Welcome in Life Support Decisions
Caregivers of critical care patients prefer doctors to keep their opinions on life support decisions to themselves.
Publish Date: 2009/08/10 - Updated: 2015/02/16

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