End of Life and Palliative Care Information | Publications
Summary: Disabled World's End of Life and Palliative Care Information category offers a range of publications, including research papers, observational studies, announcements, and notifications, addressing diverse topics such as ethical and religious barriers to medical aid in dying, the impact of writing therapy for cancer patients, proposed changes to medical assistance in dying legislation, and defining wisdom at the end of life. These articles often provide data, analysis, and insights that can be useful for individuals with disabilities, seniors, and their caregivers, as well as medical professionals, by shedding light on important considerations, decisions, and support systems related to end-of-life care.
Searching the Database: The data table below lists items that may have been updated or revised, but the table defaults to sorting by descending publication date; you can search and sort by clicking column headers (JavaScript required). Items in this category are also distributed via our End of Life and Palliative Care Information RSS feed.
| Title and Description | Ed | Publish Revised |
|---|---|---|
| Exploring the Prevalence and Impact of Ethical and Religious Barriers to Medical Aid in Dying Paper finds 26% of physician respondents reported ethical or religious barriers to participating in medical aid in dying, but many willing to engage in discussion with patients and provide referrals for care. | 31 May 2024 | |
| Writing Therapy Helps Late-Stage Cancer Patients Cope Peer-reviewed CU Boulder pilot trial finds written exposure-based coping (EASE) reduces trauma, anxiety, depression, and fear in late-stage cancer patients. | ✓ ✓ | 22 Apr 2024 3 May 2026 |
| Proposed Changes to Medical Assistance in Dying Legislation : Canadian Government Medical Assistance In Dying (MAID) is a complex and deeply personal issue. Article outlines reintroduced proposed changes to Canada's Criminal Code provisions on MAID. | 7 Oct 2020 27 Sep 2023 | |
| Palliative Care Findings on Caregiver Depression, LGBT Partners, Moral Distress Major findings from the latest research on hospital palliative care according to study published in the Journal of Hospital Medicine, an official publication of the Society of Hospital Medicine. | 20 Feb 2018 | |
| How Terminal Illness Changes Wisdom in Hospice Patients UC San Diego researchers study how hospice patients define wisdom at end of life, finding terminal illness transforms understanding through acceptance and growth. | ✓ ✓ | 25 Jan 2018 6 Feb 2026 |
| Significant Blood Pressure Drop Precedes Death by Over a Decade Research shows blood pressure in seniors gradually begins to decrease about 14 or so years before their death. | 5 Dec 2017 11 Jun 2024 | |
| How Do Doctors Make Decisions When Managing Care for Critically & Terminally Ill Patients? Study examined intubation decision-making process for 73 hospital-based doctors from 3 academic medical centers. | 5 Dec 2017 17 Sep 2023 | |
| End-of-life Care for Seniors in Nursing Homes - Call to Action IOM gathered experts in care of older adults to put together a framework and principles for improving end-of-life care. | 19 Feb 2015 28 Jun 2017 | |
| Bill to Charge Doctors with Homicide for Providing Aid in Dying Defeated Bipartisan group of legislators voted 51 to 49 to reject bill HB328, which opponents call The Physician Imprisonment Act. | 18 Feb 2015 31 May 2024 | |
| Disability Advocates Preparing to Oppose Assisted Suicide Bills Disability advocates prepared to oppose flurry of state assisted suicide bills being introduced in 2015. | 15 Jan 2015 | |
| City of West Hollywood Passes Death with Dignity Resolution West Hollywood city council voted unanimously on resolution urging Los Angeles county district attorney to de-prioritize death with dignity prosecutions. | 21 Nov 2014 | |
| US Health System Not Designed to Meet Patients Nearing End of Life Needs U.S. health care system not designed to meet needs of patients nearing end of life and those of their families - major changes to the system are necessary. | 18 Sep 2014 18 May 2021 | |
| Questions to Discuss with Parents About Their End-of-Life Care Article suggests topics that can be discussed with aging parents in regards to end of life care and their final wishes. | 22 Jul 2014 | |
| Psychiatric Advance Directives (PAD) Information and facts regarding psychiatric advance directive law for people with psychiatric illness or any other form of medical condition. | 5 Mar 2014 30 Aug 2021 | |
| Hospice Workers and Physician Assisted Death Laws Hospice workers who provide end of life care often struggle with beliefs and actions when dealing with a concept they traditionally oppose. | 22 Jul 2013 23 Jan 2022 | |
| Vermont Death-with-Dignity Law New Vermont law will let dying and mentally competent people determine when they have endured enough suffering and empowers them to end their lives with dignity. | 20 May 2013 10 Feb 2022 | |
| Nursing Home Sued for Violating End-of-Life Directive A woman is suing a Lakeland hospital and nursing home, claiming her frail, 91-year-old mother's wishes were violated when aggressive, traumatic Cardio Pulmonary Resuscitation (CPR) was imposed upon her despite a Do Not Resuscitate order. | 15 May 2013 18 Nov 2021 | |
| Meeting Standards for Good Care Near the End of Life The book separates fact from fiction, clarifying mis-perceptions that can lead to problems or conflict. | 9 May 2013 | |
| Family Tensions and Spiritual Turmoil in End-of-Life Care This article examines faith, family, and palliative care, offering insights into spiritual struggles and comfort for seniors and the disabled at life's end. | ✓ ✓ | 18 Feb 2013 24 Feb 2025 |
| Early End of Life Care Discussion Equals Less Aggressive Care Later Study reports earlier discussions about EOL care preferences strongly associated with less aggressive care and increased use of hospice care for patients with advanced cancer. | 15 Nov 2012 14 Jan 2022 | |
| Facebook Organ and Tissue Donation Feature Facebook introduces feature that lets people state their wishes to become donors in an attempt to reduce long waiting lists for organs and tissue. | 12 Sep 2012 8 Nov 2021 | |
| Health-care Costs at End of Life Often Exceeds Total Assets Researchers find a quarter of Medicare recipients spend more than total value of their assets on out-of-pocket healthcare expenses during the last 5 years of life. | 8 Sep 2012 8 Feb 2022 | |
| Pancreatic Cancer - Making Hard Choices Examines whether patients should spend a large amount of the time they have left undergoing aggressive treatment for only a brief period of additional life. | 25 Aug 2012 | |
| Do Not Resuscitate Rights for Developmentally Challenged and Seniors Calls to work with societies and advocacy groups for developmentally disabled to develop policies and ensure dignity at time of death for all individuals. | 24 Jul 2012 18 Aug 2021 | |
| Disability Activists Urge Georgia Supreme Court to Uphold Prosecution of Final Exit Network The activists are urging the state Supreme Court to uphold the prosecution of members of Final Exit Network. | 7 Nov 2011 | |
| End-of-life Discussions Do Not Affect Survival Rate Study shows patients who talk with their physicians about end-of-life care have similar survival rates as patients who do not have these discussions. | 29 Sep 2011 26 Jan 2018 | |
| End of Life Discussions for Heart Failure Palliative care for advanced heart failure patients and reevaluating when a physician should discuss a patient's goals to determine treatment. | 20 Sep 2011 13 Jul 2022 | |
| Pacific NW More Supportive of End of Life Care Options Support for palliative care options is even stronger, with nearly all Washington and Oregon voters saying it is important to have access to palliative care. | 7 Jul 2011 | |
| Oregon Creation to Help Patients with Advanced Illness The POLST program was created to honor the treatment wishes of patients with advanced progressive illness or frailty. | 16 Jun 2011 | |
| Two-Thirds of Children in Palliative Care Programs Live Longer than a Year The average life span was longer than expected and the study results help emphasize that children receiving palliative care services are living with grave life threatening conditions. | 10 May 2011 | |
| Awareness about End-of-Life Care is Essential Private Conversations and Public Discourse is a call to action that encourages a national agenda for consumer engagement in end-of-life issues. | 31 Mar 2011 | |
| End-of-Life Health Care Treatment - Have Your Say Countless families have found themselves in similar situations burdened with making difficult end-of-life health care decisions for loved ones of all ages. | 31 Mar 2011 | |
| Idaho Bill Forces Dying Patients to Go Doctor Shopping Idahoans and their families may soon have to go doctor shopping from their death beds. | 31 Mar 2011 | |
| Veterans and End of Life Care The Hospice Foundation of America has released Veterans and End-of-Life Care a free online webinar written by Deborah Grassman. | 13 Feb 2011 31 Mar 2011 | |
| Aging and End-of-Life Challenges in LGBT Community The Hospice Foundation of America aging and end-of-life challenges in the Lesbian Gay Bisexual and Transgender (LGBT) community. | 9 Feb 2011 30 Mar 2026 | |
| Creating a Living Will and Power of Attorney - Your Final Say Examines the benefits of having a living will and granting power of attorney. | 16 Jul 2010 4 Mar 2014 | |
| Global Quality of Death Index - USA in 9th Place Quality of Death Index ranks countries according to their provision of end-of-life care. | 14 Jul 2010 31 Mar 2011 | |
| End-of-life Care in Hospital Patients admitted to a teaching hospital for an end-of-life illness generally receive high-quality medical care. | 29 Jun 2010 31 Mar 2011 | |
| Right to Die Billboards Appear Across Three States Final Exit Network launched right-to-die billboards in California, New Jersey, and Florida to raise awareness on end-of-life choice and death with dignity. | ✓ ✓ | 16 Jun 2010 20 Feb 2026 |
| Does the U.S. Need to Ration Costly End-of-Life Care Should the government spend less on costly end-of-life procedures and instead use these resources to care for more patients. | 16 Mar 2010 31 Mar 2011 | |
| End-of-life Care Must Reflect Patient Values and Wishes Improved decision-making in the use of feeding tubes for hospitalized nursing home residents with advanced dementia. | 9 Feb 2010 31 Mar 2011 | |
| Doctors Opinions not Always Welcome in Life Support Decisions Caregivers of critical care patients prefer doctors to keep their opinions on life support decisions to themselves. | 10 Aug 2009 16 Feb 2015 |
Note: Disabled World compiles disability-related publications as a resource. Inclusion does not imply endorsement by Disabled-World.com. To submit disability-related articles and peer-reviewed manuscripts and papers, ensure submissions comply with our guidelines. For questions, please contact us.
Back to End of Life and Palliative Care Information Index.
Related Databases