Screen Readers Skip to Content

Family Carers Share Illness Experience of Dying Patients

Published : 2010-06-11
Author : BMJ-British Medical Journal

🛈 Synopsis : Carers felt run down and were sharing the illness especially as time went on and death approached.

Main Digest

Family carers need to be supported throughout the whole illness of their loved ones as they witness and share much of the experience of the dying person, according to research published on bmj.com today.

It has already been established that individuals dying from cancer experience distress particularly at four key time points - at diagnosis, at home after initial treatment, at recurrence, and during the terminal stage, says the study.

The authors, led by Professor Scott Murray from the University of Edinburgh, are now suggesting that family caregivers may also experience typical patterns of wellbeing and distress that their relatives are going through.

Professor Murray and colleagues carried out 42 interviews with patients with lung cancer and 46 interviews with their family carers. The interviews took place every three months for up to a year or until the patient died.

The results show that carers were generally in better health than the patients, but any health problems they had could diminish their ability to care.

The authors say that carers often felt run down and that they were sharing the illness, especially as time went on and death approached. They write: "Carers, like patients, often felt they were on an emotional roller-coaster, experiencing peaks and troughs at key times of stress and uncertainty in the cancer trajectory."

The authors conclude that psychological and existential support should be targeted at carers at the four key stages of the terminal illness. "It may also be empowering for carers to know that it is common to feel stressed and in need of support at certain times," they add.

Related Carers - Caregivers Documents

You're reading Disabled World. Be sure to check out our homepage for further informative disability news, reviews, exclusive stories and how-tos. You can also follow Disabled World on social media sites such as Twitter, Facebook, and LinkedIn.

Disclaimer: Disabled World provides general information only. Materials presented are in no way meant to be a substitute for professional medical care by a qualified practitioner, nor should they be construed as such. Any 3rd party offering or advertising on disabled-world.com does not constitute endorsement by Disabled World. View our Advertising Policy for further information. Please report outdated or inaccurate information to us.

Cite Page: Journal: Disabled World. Language: English (U.S.). Author: BMJ-British Medical Journal. Electronic Publication Date: 2010-06-11. Title: Family Carers Share Illness Experience of Dying Patients, Source: <a href=https://www.disabled-world.com/disability/caregivers/family-carers-death.php>Family Carers Share Illness Experience of Dying Patients</a>. Retrieved 2021-04-13, from https://www.disabled-world.com/disability/caregivers/family-carers-death.php - Reference: DW#83-4296.