When an infant is diagnosed with Cerebral Palsy, families' lives are changed forever. Cerebral Palsy is a group of non-progressive conditions that affect thousands of infants each year.
There are many services for families that will help them become educated about cerebral palsy. They help find medical and financial services for families also; you will get all the information and resources needed for your child.
There are cerebral palsy associations in the U.S. that families can turn to for help. Several of these organizations are listed below:
United Cerebral Palsy (UCP)
In 1949, United Cerebral Palsy was founded. This organization dedicates their services to improve the rights of individuals with disabilities. UCP offers many services nationwide such as housing, therapy, job assistance, and support for families. UCP is committed to improving independent productivity for individuals with disabilities also.
Cerebral Palsy International Research Foundation (CPIRF)
CPIRF was founded in 1955. They are devoted in supporting research related to developmental disabilities. They are dedicated to improving health care services for families. CPIRF supports research in areas like prevention and rehabilitation.
Children's Hemiplegia and Stroke Association (CHASA)
Another cerebral palsy association is the Children's Hemiplegia and Stroke Association offering support and information to families of infants, children, and young adults who have hemiplegia or hemiplegic cerebral palsy. Families can find information and issues about children with hemiplegia with the help of CHASA. You can sign up for local support groups and finds other families that are dealing with the same issues.
Easter Seals has been helping individuals with disabilities for more than 85 years. This organization provides many services to families with children that have cerebral palsy and other special needs.
Easter Seals will help with employment and child care. They also provide recreational activities and services for caregivers.
March of Dimes
The March of Dimes believes in giving babies a fighting chance against threats to their health. This organization is devoted to preventing risks such as:
Their website has information for parents about topics relevant to caring for newborns with health issues.
National Dissemination Center for Children with Disabilities (NICHCY)
An organization that offers information about specific disabilities is the NICHCY. They believe in early intervention, education rights, and more for families that have children with disabilities. They provide a wealth of information to the nation on:
National Disability Sports Alliance (NDSA)
The National Disability Sports Alliance began as the United States Cerebral Palsy Athletic Association in 1987. Ever since, they have been in charge of organizing competitive sports for people with physically disabling conditions. The NDSA is organized internationally, national and locally. They are responsible for formulating rules, carrying out policies and more.
Cerebral Palsy Associations Near You
United Cerebral Palsy has partners all over that can assist you in locating other cerebral palsy associations in your town. The associations cited above list resources on their websites also.