Palliative Care: Publications and Resources

Summary: Disabled World's End of Life and Palliative Care Information category offers a range of publications, including research papers, observational studies, announcements, and notifications, addressing diverse topics such as ethical and religious barriers to medical aid in dying, the impact of writing therapy for cancer patients, proposed changes to medical assistance in dying legislation, and defining wisdom at the end of life. These articles often provide data, analysis, and insights that can be useful for individuals with disabilities, seniors, and their caregivers, as well as medical professionals, by shedding light on important considerations, decisions, and support systems related to end-of-life care.

Searching the Database: The data table below lists items that may have been updated or revised, but the table defaults to sorting by descending publication date; you can search and sort by clicking column headers (JavaScript required). Items in this category are also distributed via our Palliative Care RSS feed.

Palliative Care: Publications and Resources
Title of Document	Paper Author	Peer Review	Preface / Postface	Reference Number	Publish Date	Updated / Revised
Exploring the Prevalence and Impact of Ethical and Religious Barriers to Medical Aid in Dying	University of Colorado Anschutz Medical Campus	Yes		DW-A014799	2024/05/31
Writing Therapy Provides Solace for Advanced Cancer Patients Facing Their Fears	University of Colorado at Boulder	Yes		DW-A014750	2024/04/22
Proposed Changes to Medical Assistance in Dying Legislation : Canadian Government	Department of Justice Canada	Yes		DW-A013889	2020/10/07	2023/09/27
Palliative Care Findings on Caregiver Depression, LGBT Partners, Moral Distress	Loyola University Health System			DW-A013269	2018/02/20
Defining the Changing Nature of Wisdom at the End of Life	University of California - San Diego			DW-A013237	2018/01/25
Significant Blood Pressure Drop Precedes Death by Over a Decade	University of Connecticut	Yes		DW-A013138	2017/12/05	2024/06/11
How Do Doctors Make Decisions When Managing Care for Critically & Terminally Ill Patients?	The Dartmouth Institute for Health Policy & Clinical Practice	Yes		DW-A013137	2017/12/05	2023/09/17
End-of-life Care for Seniors in Nursing Homes - Call to Action	Indiana University			DW-A011269	2015/02/19	2017/06/28
Bill to Charge Doctors with Homicide for Providing Aid in Dying Defeated	Compassion & Choices			DW-A011261	2015/02/18	2024/05/31
Disability Advocates Preparing to Oppose Assisted Suicide Bills	Not Dead Yet			DW-A011122	2015/01/15
City of West Hollywood Passes Death with Dignity Resolution	City of West Hollywood			DW-A010878	2014/11/21
US Health System Not Designed to Meet Patients Nearing End of Life Needs	National Academy of Sciences			DW-A010607	2014/09/18	2021/05/18
Questions to Discuss with Parents About Their End-of-Life Care	Hospice Foundation of America			DW-A010464	2014/07/22
Psychiatric Advance Directives (PAD)	Thomas C. Weiss			DW-A010131	2014/03/05	2021/08/30
Hospice Workers and Physician Assisted Death Laws	Ian C. Langtree			DW-A09826	2013/07/22	2022/01/23
Vermont Death-with-Dignity Law	Ian C. Langtree			DW-A09727	2013/05/20	2022/02/10
Nursing Home Sued for Violating End-of-Life Directive	Compassion & Choices			DW-A09717	2013/05/15	2021/11/18
Meeting Standards for Good Care Near the End of Life	Hastings Center, Inc.			DW-A09705	2013/05/09
Family Tensions and Spiritual Turmoil in End-of-Life Care	Case Western Reserve University	Yes	✓ Preface ✓ Postface	DW-A09582	2013/02/18	2025/02/24
Early End of Life Care Discussion Equals Less Aggressive Care Later	American Society of Clinical Oncology			DW-A09415	2012/11/15	2022/01/14
Facebook Organ and Tissue Donation Feature	The Hastings Center			DW-A09269	2012/09/12	2021/11/08
Health-care Costs at End of Life Often Exceeds Total Assets	The Mount Sinai Hospital			DW-A09259	2012/09/08	2022/02/08
Pancreatic Cancer - Making Hard Choices	University of Texas Medical Branch at Galveston			DW-A09215	2012/08/25
Do Not Resuscitate Rights for Developmentally Challenged and Seniors	American Osteopathic Association			DW-A09151	2012/07/24	2021/08/18
Disability Activists Urge Georgia Supreme Court to Uphold Prosecution of Final Exit Network	Not Dead Yet			DW-A08610	2011/11/07
End-of-life Discussions Do Not Affect Survival Rate	Wiley-Blackwell			DW-A08499	2011/09/29	2018/01/26
End of Life Discussions for Heart Failure	The Heart Failure Society of America			DW-A08467	2011/09/20	2022/07/13
Pacific NW More Supportive of End of Life Care Options	The Regence Foundation			DW-A08139	2011/07/07
Oregon Creation to Help Patients with Advanced Illness	Oregon Health & Science University			DW-A07979	2011/06/16
Two-Thirds of Children in Palliative Care Programs Live Longer than a Year	The Children's Hospital of Philadelphia			DW-A07614	2011/05/10
Awareness about End-of-Life Care is Essential	National Hospice and Palliative Care Organization			DW-A07342	2011/03/31
End-of-Life Health Care Treatment - Have Your Say	Amedisys			DW-A07341	2011/03/31
Idaho Bill Forces Dying Patients to Go Doctor Shopping	AARP Idaho			DW-A07340	2011/03/31
Veterans and End of Life Care	Hospice Foundation of America			DW-A06950	2011/02/13	2011/03/31
Aging and End-of-Life Challenges in LGBT Community	Hospice Foundation of America			DW-A06888	2011/02/09	2022/06/09
Creating a Living Will and Power of Attorney - Your Final Say	Jari Holland Buck			DW-A04656	2010/07/16	2014/03/04
Global Quality of Death Index - USA in 9th Place	The Lien Foundation			DW-A04616	2010/07/14	2011/03/31
End-of-life Care in Hospital	RAND Corporation			DW-A04479	2010/06/29	2011/03/31
Right to Die Billboards	Final Exit Network			DW-A04333	2010/06/16	2016/03/18
Does the U.S. Need to Ration Costly End-of-Life Care	National Press Club			DW-A03437	2010/03/16	2011/03/31
End-of-life Care Must Reflect Patient Values and Wishes	Brown University			DW-A03205	2010/02/09	2011/03/31
Doctors Opinions not Always Welcome in Life Support Decisions	American Thoracic Society			DW-A02079	2009/08/10	2015/02/16

Note: Disabled World presents this compilation of publications relevant to disabilities as a valuable resource. However, inclusion in the database does not necessarily imply endorsement or agreement with the content by Disabled-World.com

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