Carers - Caregivers: Publications and Resources

Summary: This database contains a comprehensive collection of publications related to caregivers and carers. These publications include articles, research papers, and documents covering various aspects of caregiving and support services. The database is regularly updated and covers a wide range of topics relevant to the disability community, their families, and caregivers. While the primary focus is on caregiving, the publications also address related subjects such as disability rights, healthcare, education, employment, and independent living, reflecting our broader mission to provide valuable resources and information to the disability community.

Searching the Database: The data table below lists items that may have been updated or revised, but the table defaults to sorting by descending publication date; you can search and sort by clicking column headers (JavaScript required). Items in this category are also distributed via our Carers - Caregivers RSS feed.

Carers - Caregivers: Publications and Resources
Title of Document	Paper Author	Peer Review	Preface / Postface	Reference Number	Publish Date	Updated / Revised
HCBS Reform: Community Living Over Institutions	Nicole LeBlanc Via George Cassidy Payne		✓ Preface ✓ Postface	DW-A015234	2026/01/23
It's Time to Care for Caregivers: Family Caregiving Legislative Agenda	Senator Edward J. Markey		✓ Preface ✓ Postface	DW-A015188	2025/11/22	2025/11/26
The Hidden Cost of Care: Society Undervalues Unpaid Caregivers	American Psychological Association	Yes	✓ Preface	DW-A014939	2024/10/19
Changes Challenges and Choices - Caring for a Disabled Family Member	Kathleen M. Cleaver			DW-A014074	2022/05/08
Yelp Reviews of Nursing Homes Tend to Focus on Staff Attitudes and Responsiveness	University of Southern California			DW-A013415	2018/04/26
Palliative Care Findings on Caregiver Depression, LGBT Partners, Moral Distress	Loyola University Health System			DW-A013269	2018/02/20
Caregiving by Family Members and Other Unpaid Individuals	American Geriatrics Society			DW-A012891	2017/06/15	2021/03/13
Film Highlights Absurdity of 15 Minute U.K. Care Visits	UNISON			DW-A012792	2017/04/12	2018/04/30
Delays in California Caregiver Payments Hearing	Ian C. Langtree			DW-A012465	2016/10/31	2016/11/06
Report Reveals Distress, Anger, Depression and Burnout Among Family Carers	Health Quality Ontario			DW-A012103	2016/04/08	2019/12/27
Home Care: LGBTQ People Often Invisible	York University			DW-A011978	2016/03/01	2021/06/19
Family Caregivers and Employer Compassion	Caregivers with Hope			DW-A011944	2016/02/23	2019/06/03
Carebots: Family Care and Personal Assistance	Thomas C. Weiss			DW-A011737	2015/11/26	2021/07/16
Who Mothers Mommy? Phenomenological Experience of Motherhood	Arizona State University			DW-A011710	2015/11/04	2020/08/31
Help for Family Caregivers as NY Governor Signs CARE Act	AARP New York			DW-A011690	2015/10/27
Long Distance Caregiver Commuting Tips	BeSmartBeWell			DW-A010813	2014/11/11	2020/11/27
Pope Francis Puts Spotlight on Senior Neglect	National Association of Professional Geriatric Care Managers			DW-A010648	2014/10/01	2021/05/11
Family Caregivers Overwhelmed by Caregiving Responsibilities	AARP New York			DW-A010640	2014/09/29	2016/04/08
Daughters Provide Majority of Parent Care - Sons Do Little as Possible	American Sociological Association			DW-A010530	2014/08/19	2021/11/15
Home Health Care Safety and Awareness Issues	Thomas C. Weiss			DW-A09872	2013/09/09	2021/08/27
Understanding Patient Abuse: A Caregiver's Perspective on Risks and Solutions	Thomas C. Weiss		✓ Preface ✓ Postface	DW-A09081	2012/06/21	2025/06/23
Challenges and Solutions of Caregiving	Thomas C. Weiss			DW-A09064	2012/06/08	2021/09/04
Home Care Concerns: Providing Care at Home	Thomas C. Weiss			DW-A09020	2012/05/03	2021/09/15
House Vote to Repeal CLASS Ignores Needs of Seniors, Families and Caregivers	National Council on Aging			DW-A08840	2012/02/06
Most People Will Need Long-Term Care at Some Stage	Ian C. Langtree			DW-A08661	2011/11/21	2022/06/02
How to Choose a Home Health Aide	Jessica Bosari			DW-A08575	2011/10/23	2021/12/11
Prevent Family Clashes When Caring for a Family Member	Anthony J. Enea, Esq.			DW-A08384	2011/08/22
Caring for Elderly Relatives in Britain	Helping Hands			DW-A08349	2011/08/16	2022/01/14
Many Families Overestimate Cost of Senior Home Care	Ian C. Langtree		✓ Preface ✓ Postface	DW-A08326	2011/08/11	2025/04/21
U.S. Family Caregiving Valued at $450 Billion	AARP			DW-A08213	2011/07/18	2022/02/08
Assisted Living: Best Practices Revealed	Caring, LLC			DW-A07907	2011/06/10	2022/03/11
Family Caregiver Training - VA Partners with Easter Seals	Easter Seals			DW-A07632	2011/05/11
Depression and Burden Affects Caregivers of Those with Sensory Impairment	Allen Press Publishing Services			DW-A06949	2011/02/13
Family Caregivers Face Financial Problems, Stress and Work Issues	Caring.com			DW-A06824	2011/02/03
Seniors Can Benefit From Congregate Living	Atria			DW-A06795	2011/02/01
Flagler County In-home Care - Caring for the Elderly	Always Best Care of Flagler County			DW-A06246	2010/11/21
Family Caregiving: Facts and Myths	Ian C. Langtree			DW-A06062	2010/11/02	2020/11/08
Carers Advisory Council to Look at Issues Faced by Young Carers	Department of aging, Disability and Home Care			DW-A05966	2010/10/25
Caring Hands Support Program for Carers - Ireland	Caring Hands			DW-A05933	2010/10/22
60% of Women Don't Know How They'll Pay for Long-Term Care Needs	AARP			DW-A05801	2010/10/12
Fact Sheets Highlighting Critical Issues on Long-Term Care	The SCAN Foundation			DW-A05402	2010/09/16
Detecting Depression in Caretakers of Mentally Ill Adults	Case Western Reserve University			DW-A04919	2010/08/16
On-the-job Injuries Hurt Home Health Care Industry	Penn State			DW-A04863	2010/08/09
Tips for Caregivers Searching for Help and Information	Anthem Blue Cross and Blue Shield in Missouri		✓ Preface	DW-A04808	2010/08/02	2025/02/16
Who Will Take Care of 71.5 Million Baby Boomers	Ian C. Langtree		✓ Preface ✓ Postface	DW-A04718	2010/07/22	2025/04/21
Patient Advocacy Leads to Better Quality of Life	Kidney Cancer Canada			DW-A04313	2010/06/14
Recognition for UK Caregivers During Carers Week	Carers Week			DW-A04309	2010/06/14
Cost of U.S. Home Health Care	Susan Slobac			DW-A04305	2010/06/13	2017/08/10
Family Carers Share Illness Experience of Dying Patients	BMJ-British Medical Journal			DW-A04296	2010/06/11
Residential Care Home Workers Need More Training to Give Seniors a Home for Life	University of Warwick			DW-A04044	2010/05/24
Family Caregiving can be Stressful and Isolating	Penn State			DW-A03662	2010/04/22
CareRunner Caregiving Website Launched	CareRunner			DW-A02599	2009/10/22
Rally in Oakland Against Cuts in IHSS Program	UDW Home-care Providers Union			DW-A02561	2009/10/19
Australia Acknowledges Carers during Carer's Week	Northcott Disability Services			DW-A02542	2009/10/15
Home Health Care Report	Press Ganey Associates			DW-A02515	2009/10/09	2012/03/14
Injury and Hazards in Home Nursing	Columbia University's Mailman School of Public Health			DW-A02500	2009/10/07	2010/07/09
Chronic Pain in Nursing Home Residents Underestimated	Wiley-Blackwell			DW-A02329	2009/09/17	2016/05/20
Needs of Unpaid Caregivers of People with Diabetes	The Endocrine Society			DW-A02111	2009/08/18
Providing Home Assistance to Seniors	georgelarson			DW-A02099	2009/08/16	2014/03/14
Caregiver Coalition Commends Government for Allowance to Aid Caregivers	Canadian Caregiver Coalition			DW-A02091	2009/08/14
Certified Nursing Assistant Code of Ethics	Thomas C. Weiss			DW-A01972	2009/07/21	2019/12/16
Alliance Joins MADIL the State's Online Elder, Disability Info Database	Home Care Alliance			DW-A01689	2009/06/03	2015/11/18
Family Caregivers Contribute $25 billion in Unpaid Labor to the Health Care System	Canadian Caregiver Coalition			DW-A01465	2009/04/14
Find a Qualified Reliable Caregiver	Ian C. Langtree			DW-A01343	2009/04/03	2011/05/30
Caregivers Not Receiving Help They Need	Wake Forest University Baptist Medical Center			DW-A0753	2009/02/12	2016/04/02
Choosing a Home Health Care Service	Terri Polk			DW-A0698	2009/02/08	2010/11/13
Medication and Care for Alzheimer Patients	Ian C. Langtree			DW-A0526	2009/01/27
Abuse of People with Dementia by Family Carers Common	University College London	Yes	✓ Preface ✓ Postface	DW-A0486	2009/01/23	2025/06/23
Family Caregiving	Sybil Campbell			DW-A0101	2008/12/27	2009/02/03
Home Care Training for Caregivers	Andy West			DW-A0100	2008/12/27	2013/06/16
Caregivers that Provide End of Life Care Need Support	Carol Howland			DW-A099	2008/12/27	2010/06/25
Home Safety Essentials for Caregivers and Seniors	Ian C. Langtree		✓ Preface ✓ Postface	DW-A098	2008/12/27	2025/12/01
Hiring Caregivers for Seniors and Disabled	Annette Gonzalez			DW-A0102	2008/12/09	2010/03/18

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